Sheila Posted August 27, 2015 Report Share Posted August 27, 2015 **PLEASE NOTE that this product has been discontinued since 2017 so the thread has been closed to avoid any confusion** Mater Technologies has developed a non-invasive, natural product (Repreeve) to help reduce symptoms of tics, stuttering, and nystagmus. The approach has no significant side-effects, is reasonable in cost, and is currently undergoing trials. A free sample of the product (six small patches) will be sent on request to those who meet the symptom profile and would like a trial. The purpose of the sample is to help you determine whether this approach might be useful to you. No claims are made regarding any health benefits. All communication is confidential. If you have questions about Repreeve, please contact the developers directly at 206.780.7465. ACN Latitudes is not affiliated with it in any way. Link to comment Share on other sites More sharing options...
Mayzoo Posted August 27, 2015 Report Share Posted August 27, 2015 I am requesting a sample. Time will tell. Link to comment Share on other sites More sharing options...
Mayzoo Posted August 28, 2015 Report Share Posted August 28, 2015 Here is a small part of the e-mail I received back: "Repreeve is like an acupressure derivative. It does not contain chemicals (it does have adhesive on each patch- similar to a clear bandaid). It puts a tiny amount of pressure in six different locations in the body." "I might add that some of the benefits we hear quite often include feeling calmer, better sleep, less anxiousness and less upset stomach." "We have not tried the patches historically on children who have identified PANDAS as a source of their tics but we have worked very successfully with auto immune disorders in adults such as MS and Parkinson's and we have worked with Doctors to obtain objective results in some of those cases." Link to comment Share on other sites More sharing options...
Mayzoo Posted September 13, 2015 Report Share Posted September 13, 2015 I just applied the patches tonight. Will post back in a few days to let you know if I see a difference. We are not in a bad flare right now, but kiddo does have her vocal tic, piano fingers, and the upsets at least once a day right now. Link to comment Share on other sites More sharing options...
Char Posted September 18, 2015 Report Share Posted September 18, 2015 Mayzoo, how are the patches working? Link to comment Share on other sites More sharing options...
kptrsn Posted February 9, 2016 Report Share Posted February 9, 2016 MAYZOO... do you have any feed back on the patches from your experience? Link to comment Share on other sites More sharing options...
Mayzoo Posted February 10, 2016 Report Share Posted February 10, 2016 Sorry, but they did not help kiddo with vocal tics or selective mutism. Link to comment Share on other sites More sharing options...
Cleopatra Posted February 10, 2016 Report Share Posted February 10, 2016 MAYZOO , HD IVIg cured my daughters mutism. Have you tried it? Link to comment Share on other sites More sharing options...
Mayzoo Posted February 11, 2016 Report Share Posted February 11, 2016 (edited) No, and my state just went to all HMOs, so it unlikely to be an option any longer. Her doc is not an insurance option, so I do not know if he orders this, would the insurance cover it. Probably not. We are waiting until we get her viral titers under more control before spending that kind of money on IVIG. If her titers are way out of control, as I understand it, it may help for a few weeks, but the viruses will just kick back in and negate all progress we make. Most her viral titers are dropping, but are still almost 10 times higher than they should be. EBV, varicella, HHV-6 are all 10 times or more higher than they should be. Others are high too, but those are the biggies right now. Edited February 11, 2016 by mayzoo Link to comment Share on other sites More sharing options...
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