PANS + Lyme + manganese?

[BJ47]

I was recently diagnosed with chronic Lyme (with a chronic strep confection). Since I've had tics since childhood, my doc considers it PANS. I've been on his treatment regimen for a couple weeks now, which includes minocycline, rifampin, antifungals, a biofilm buster, LDN, and a few other odds and ends.

 

I also recently got back the results from a urine neurotransmitter test. It showed I had low levels of GABA and serotonin, and high levels of epinephrine. The recommended treatment was a duo of supplements called Travacor and Symotix. My LLMD/PANS doc agreed with the assessment so I started the Travacor per the lab's instructions, and added in the Symotix a week later.

 

Upon adding the Symotix, I noticed an increase in my tics. Just really intense internal tension and irritability. I read the label and saw that it includes 2mg of manganese...100% of the daily requirement. I've read before that people with tics should not take manganese.

 

I don't know if the increase in tics could be from the manganese or part of a herx reaction to the Lyme/strep dying off. I got some relief from stopping the Symotix after a couple days so I'm inclined to believe that was the problem.

 

Anyone have any info about tics and manganese?

Edited March 27, 2015 by BJ47

[msimon3]

You may want to consider limiting your intake of manganese. New research suggests Borrelia use it to survive:

 

http://www.whoi.edu/oceanus/feature/scientists-find-surprising-lyme-disease-bacteria-has-quirky-needs

[bws1565]

I am very intrigued by this topic. I have recently read about a dr. shauna young who is helping people get manganese out of their bodies to help with autism! She claims to have excellent success. She has recently written a book entitled "Erasing Autism". I wonder if this is not all linked: Lyme, manganese and autism spectrum disorders.