Interview w/Dr. Swedo

[bigmighty]

Listen to show # 002 to hear an interview w/Dr. Swedo - it's 30 min. She mentions new family DNA research, but I can't find anything about clinical trials online. Would love to volunteer.

[PowPow]

Is ther e a link?

[bigmighty]

http://www.magic983.com/maggie-glynn.aspx

 

Oops - here it is

[bigmighty]

She briefly hit on the idea of having monthly throat cultures just to stay a step ahead, once a child is in remission. Seems especially helpful for kids going off to college.

[EAMom]

Very nice interview.

However, I'm not happy about the end where Dr. Swedo recommends the NIH FAQ sitehttp://www.nimh.nih.gov/.../publications/pandas/index.shtml which has outdated information, and steers readers away from antibiotics and treating the inappropriate immune response. For example:

"What are the treatment options for children with PANDAS?

The treatments for children with PANDAS are the same as if they had other types of OCD or tic disorders. Children with OCD, regardless of whether or not their illness is strep triggered, benefit from cognitive behavioral therapy and/or anti-obsessional medications. A recent study showed that the combination of an SSRI medication (such as fluoxetine) and cognitive behavioral therapy was the best treatment for OCD, and that medication alone or cognitive behavioral therapy alone were better than no treatment, or use of a placebo (sugar pill). It often takes time for these treatments to work, so the sooner therapy is started, the better it is for the child.

Children with strep triggered tics should be helped by the same tic medications that doctors use to treat other tic disorders. Your child's primary physician can help you decide which type of specialist your child may need to see to receive these treatments."

[nicklemama]

I don't know whether to laugh or scream. I wish she knew that my son had zero cognitive behavioral therapy nor did he take anti obsessional medications (except for a trial period of 6 weeks that had horrible results) and now that he's been properly treated for all his infections, he does not have OCD. He currently does not have any tics. He went to the dentist Monday, so I'm holding my breath. He usually gets tics after a dental visit, even with the addition of clindamycin for 10 days. Whatever happened to the idea of getting rid of the trigger? Ugh. She is a psychiatrist isn't she? That probably explains her answer. Ask a neurologist, get a different answer. Ask an immunologist, get a different answer. Ask a pediatrician, get no answer, lol.

[qannie47]

Well, my initial reaction was, nothing knew to be learned here, but one must remember, we are all veterans in what is considered "new science".

[EAMom]

Nicklemama,

 

What she says in the interview also conflicts with the info provided in the FAQ site. The FAQ is sorely out of date, yet it remains up on the NIMH website. Ugh.

Edited November 5, 2014 by eamom

[MomWithOCDSon]

With respect to DNA research, I know that, last I heard, Dr. David Rosenberg at Wayne State (and some affiliation with Children's Hospital of Detroit) was studying heredity with respect to OCD, glutamate, etc. I found this, dated September 2014:

 

http://www.uptodate.com/contents/obsessive-compulsive-disorder-in-children-and-adolescents-epidemiology-pathogenesis-clinical-manifestations-course-assessment-and-diagnosis