Lydiasmum Posted June 25, 2014 Report Share Posted June 25, 2014 Hi everyone, I haven't posted for a while as things have been very good with my 6 year old daughter. Without going through all the history again, I will tell you I strongly believe her first major PANDAS flare was at 4.5 years old when she presented with extreme Tourette symptoms overnight. Looking back there were minor clues before this following an illness-ridden year at nursery with lots of URTI's and no abx treatment (always diagnosed as viral). Symptoms waxed and waned for a year and she has been stable now for over 8 months. We (sort of) have her paediatrician on our side - he is supporting her with preventative abx which she has been taking for 10 months with good results. This week, however, I have noticed more hyperactivity and extreme reactions to sad cartoon and pictures - breaking her heart if cartoon characters are shedding tears!! These same cartoons haven't bothered her in ages, but used to when we have had flares in the past. She is also grunting and has been asking some checking questions over and over again. Oddly enough, my husband came down with a severe sore throat on Monday evening - he says it feels as though he is swallowing glass. Coincidence? My husband's GP won't do a strep test so I have asked my daughter's paediatrician if he can write a some sort of supporting letter to our own GP's to back up why testing and treating is so important, given the unusual circumstances in our household. Can any of you relate to this or suggest anything to stop this possible mini flare escalating. I don't think I'm going mad but I'm sure there's something in all of this. Call it mum instinct... Link to comment Share on other sites More sharing options...
qannie47 Posted June 26, 2014 Report Share Posted June 26, 2014 I would start a higher dose of abx as if she is sick. Catch it quick... What I don't understand is why some of these docs wont do a simple strep test.... Link to comment Share on other sites More sharing options...
Missmom Posted June 26, 2014 Report Share Posted June 26, 2014 You can purchase online strep tests and run them yourself. I know they are not always accurate, but if one did show positive you could march it on down to your GP office and show him. Maybe then he will write a prescription. I also agree to increase to treatment dose of abx for your daughter if you can. Link to comment Share on other sites More sharing options...
MaryAW Posted June 27, 2014 Report Share Posted June 27, 2014 My dd had the exact same problem with sad cartoons. She needed CBT to help her get thru it. Could this be from the pollen? My dd has a bad time with allergy season. We give her Zyrtec, vitamin C, and Ibuprofen during pollen season. Omega 3's and vitamin D help also. Link to comment Share on other sites More sharing options...
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