T_Anna Posted June 20, 2014 Report Share Posted June 20, 2014 We were switched from Mepron + Azith to Rifampin + Azith at our last KKMD appointment. DS16 is doing much better so we are a bit afraid to start and deal with another herx. Has anyone tittered up on Rifampin? How did you do this...once a day...every other day? It seems to be the go to abx for Bartonella which is what we are trying to treat, Thanks as always, T.Anna Link to comment Share on other sites More sharing options...
NancyD Posted June 20, 2014 Report Share Posted June 20, 2014 Both my DD and I have been on Rifampin. My DD twice. The first time we titrated up -- we started with 1 cap per day the first week and then 1 cap BID thereafter. We both had really bad herxing but found Rifampin to be very helpful. The second time she went on Rifampin both the doctor and I forgot to titrate up and the herxing was REALLY bad!! So best to titrate. If you need it dye-free as we do you'll have to have it compounded, although the powder itself is a natural orange (and will turn your pee orange). We were switched from Mepron + Azith to Rifampin + Azith at our last KKMD appointment. DS16 is doing much better so we are a bit afraid to start and deal with another herx. Has anyone tittered up on Rifampin? How did you do this...once a day...every other day? It seems to be the go to abx for Bartonella which is what we are trying to treat, Thanks as always, T.Anna Link to comment Share on other sites More sharing options...
Hopeny Posted June 21, 2014 Report Share Posted June 21, 2014 Be careful with the dosing as you can inadvertently build resistance with Rifampin. I would not skip days, but rather start a lower dose. Link to comment Share on other sites More sharing options...
T_Anna Posted June 23, 2014 Author Report Share Posted June 23, 2014 Thanks Everyone! We will prob start this Saturday. I will call the NP at the LLMD and ask her about doing one a day for a while. T.Anna Link to comment Share on other sites More sharing options...
rowingmom Posted June 25, 2014 Report Share Posted June 25, 2014 DD didn't herx too badly with biaxin/rifampin, even though bart was her major symptomatic infection. Tindamax was much worse. Link to comment Share on other sites More sharing options...
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