Curious about flares..

[ibcdbwc]

Hi,

 

This is just a curious question as I've been reading Dr. T's slides from the conference along with various other theories. I think most of this forum can agree that our children have flares of some sort or another regardless of their baseline. And certainly we all have different triggers from strep to viruses to lyme or any inflammatory process in general.

 

My question is: when do your children flare most consistently and has the pattern changed?

 

Is it before illness (canary in a coal mine?), during an active illness, after a specific illness (several days or weeks?), or more chronic waxing and waning because of underlying inflammation. I'm guessing all of the above but wondering if there are patterns that you see?

 

 

 

 

[rowingmom]

DD would generally flare 1-2 days before an illness (cold, strep infection, stomach virus), with the worst part of the flare being during the illness. If a fever was involved the symptoms would resolve during the fever but return after the fever had broken. In both cases the flare would then continue for several days afterwards.

 

DD is at a point now where she no longer flares with illness. The last one she had happened approx. 1 week before she developed a yeast infection, so her body was dealing with increasing yeast. This latest flare included only red circles under the eyes and some ticcing (and well, itching). All other symptoms (urinary frequency, loss of handwriting/math ability, emotional lability, distractability, insomnia, etc.) remained at baseline (which now is 0).

Edited February 25, 2014 by rowingmom

[qannie47]

Oh that Pandas.....my kneejerk answer is...All of the above.

 

But in General.

 

Flares 1-2 days before symptomatic of infection.

 

If running a fever, flares die down and then into full swing once fever goes away.

 

Wax/Waning were more a part of our picture before IVIG. (the first year he was dx), It drove me crazy. After IVIG, flares were more cut and dry, very little wax/wane.

 

My latest protocol is that if my ds looks symptomatic, meaning a steady expression of his own unique Pandas symptoms for more then 1 1/2 days, I start full dose of abx on that 2nd day. For me, I don't want to play around anymore and see what happens....