Any PANDAS-friendly pediatricians in Connecticut?

[BeeRae22]

I would REALLY like to find a pandas friendly ped in Connecticut. Our ped claimed to "know" about pandas, but proved to be someone who's confidence acceeded his abilities, which can be worse than just not knowing anything at all!

 

 

[philamom]

What about Dr. B in Stamford. We travel from the Philly area to see Dr. B and Dr. J (llmd) in New Haven.

Edited February 4, 2014 by philamom

[philamom]

There's also Dr. M and Dr. O in CT. Both are fantastic, integrative, and can address PANDAS, PANS, chronic infections.

[philamom]

Also, have the name of a ped GI doctor near Stamford. No personal experience, but was recommended to us when my dd was having some major GI issues. PM me if interested.

Edited February 4, 2014 by philamom

[BeeRae22]

We are seeing Dr. M for treatment, but I am also looking for a primary care ped for dd....

 

Dr. M doesn't take insurance (he doesn't do primary care anyway) and Dr. B is impossible to get an appointment with. I don't believe Dr. O takes insurance or does primary care either, and her price menu is very high.

 

I am on a more than limited budget. I honestly really can't afford Dr. M either, but dd needs to be treated so that's what we're doing.

 

I am looking for a primary care ped in New London County area-- Hartford and south east. Preferrably east of the river.

[philamom]

Sorry, didn't realize. It stinks that this all has to be that difficult. My plan allows for not having a primary. We use a mainstream ped for simple stuff (like there is any) and a DO who assists with our specialists when needed. Good luck.

[BeeRae22]

thanks anyway I just got a referral call from a "nutritionist" (from the ped we have now) to "help dd learn to eat better" --- well, if she ate ANYTHING it might be worth trying! idiots! she's on a completely liquid diet at this point. We last saw the ped a MONTH ago, and I'm getting this call now-- not that it would serve any purpose anyway...... sigh. I'm so frustrated with all of this.

[philamom]

If your insurance covers Dr. B, I would call everyday to check for cancellations- esp. given this weather.

Hang in there.

 

btw- I will pm you the name of the GI doctor to keep in your back pocket. He takes insurance, and sounds like he's open-minded, esp. to infections.

[mama2alex]

Could you ask Dr. M if he can recommend a pediatrician who "gets it" in your area? You could also try calling Dr. B or Dr. Jones' office to see if they can recommend a pediatrician. This is not an uncommon need, so someone must know of someone good.