Good explanation for getting tonsils removed...

[JuliaFaith]

"The tonsils are the beginning of the GALT (Gut-associated lymphoid tissue) which is 80% of the immune system. The tonsils program the entire system. Some may have had their tonsils removed but can still have problems. Microbes live in the tonsils and tell the lymph that the bugs are not a threat. You then end up with cross-reactions like PANDAS (now PANS) or in adults joint and cardiac Lyme. The immune reactions go away when you deal with the tonsil issue. Sinus, nose, tonsils are all the same tissue and must all be considered." - See more at: http://www.betterhealthguy.com/physician-s-round-table-2012

[qannie47]

"Some may have had their tonsils removed but can still have problems"...."The immune reactions go away when you deal with the tonsil issue." This is not making sense to me. It seems to contradict itself. Can someone explain what I am missing?

[JoyBop]

I have to say, I disagree and don't know where they are coming from. Are they saying when you take out the tonsils. And all other sinus and nose tissue pandas goes away? Kids can get pandas with or without their tonsils. My kids have both had their tonsils out since developing pandas and they still have flares. There is no doctor that would consider taking out the "nose and sinus tissue" as well. Maybe I am misunderstanding?

[JuliaFaith]

Joybop--these are just bullet notes taken at a conference. If you go to the site you will see several notes on different doctors that are presenting. So this was taken out of context and is just a quick note on what was presented at one moment during the conference, second hand.

Sorry if it was confusing.

[JuliaFaith]

A couple of visits ago to doctor (not our usual), my ds's tonsil area (they were removed) where muscle-testing as an area of concern. My son was having a small flair at the time that I suspected as PANS. She confirmed the PANS flair and prescribed abx (which I had already started) along with supplemental support for the cough which has always been a red flag for flair.

 

Told doctor son had never had strep and she said PANS can still test where tonsils have been removed. That is why I found this information interesting.

[JoyBop]

Sonrhere was evidence if PANS? Where the tonsils used to be?

I hope your son responded well to abx and is doing better now. Sometimes it takes someone who thinks outside the box to get to the bottom if things.

[JuliaFaith]

joybop--ya, really weird huh? We are probably one of the 'more outside the box' people on here.

 

His flair was at the end of GCMAF treatment which can cause inflammation. This along with his normal trigger (cough) caused a med. flair. He was over the cough in a few weeks but has some residual OCD (that happened to be around during GCMAF too). It has been only 2 months, and usually it takes 3 months (or up to a year for large flair) for all his symptoms to disappear (we hope since his baseline has improved substantially since GCMAF treatment). Have read that it takes this long to heal brain.