PANDAS referral

[don]

I'm looking for a physician at UCSF or Stanford to evaluate a patient with probably PANDAS syndrome. Is there one at either hospital that is expert in this problem? Or, alternatively, someone in the San Francisco bay area. Thanks.

Edited December 11, 2013 by don

[Chemar]

Hi

so sorry you have not received a reply.

 

It would be best to post this on our PANDAS forum

http://latitudes.org/forums/index.php?showforum=17

[blakes_mom]

Try going on pandasnetwork.org and you can search for a pandas physician by state.

[sf_mom]

There are plenty of good Dr.'s in Bay Area that understand PANS/PANDAS and can help. Unfortunately, the most skilled at treating are not at Stanford or UCSF.

 

We used to live in the city and at the time tried to educate our pediatrician, saw a non believing immunologist at CPMC, spoke with movement disorder specialist at UCSF (he helped with directing us toward PANDAS/PANS diagnoses) plus went to Stanford. Most could not help us or treat. We now live 2 miles from Stanford and do not see any Dr.'s there due to lack of experience treating. Our older son had his sudden on-set at 5 years of age after annual vaccinations, strep related illness and virus within 3 week period. He is now well and is 9 years old.

 

Here is the short list for the Bay Area:

 

Dr. Lynn Mielke in Pleasanton: Developmental Spectrum Disorder (best initial evaluation with blood work)

 

Dr. Julie Griffith in San Rafael: My Brain Health

 

Dr. Raj Patel in Redwood City: Medical Options for Wellness

 

Dr. Elisa Song in Belmont: Whole Child Wellness (If Dr. Song is not accepting new patients I understand Dr. Chandra is just as good)

 

Dr. Sunjay Schweig in Petaluma: Hill Park Medical Center

 

There are more treating Dr.'s with specific specialities but the above list is a good start.

Edited December 22, 2013 by sf_mom