qannie47 Posted December 7, 2013 Report Share Posted December 7, 2013 Today, my ds and I saw an ENT doc to schedule a tonsillectomy. I was dreading it a bit, because of course, I was going to have to bring up Pandas, and I did not relish the whole "deer in the headlight", glazed eyeball stare... Guess what? I did not experience that at all! While this doc expressed that she had not yet had a patient with this diagnosis, she was clearly open minded, on board, and willing to help. She said that she was going to talk to Dr. K, our Peds doc and collaborate to make sure that my ds had the best outcome possible with minimal complications... I think that this speaks to the fact that doctors are finally looking/thinking outside of the box and embracing new science... kimballot 1 Link to comment Share on other sites More sharing options...
cobbiemommy Posted December 7, 2013 Report Share Posted December 7, 2013 Wonderful news. Our ENT was wonderful and supportive and it does make a world of difference. The word is getting around... Link to comment Share on other sites More sharing options...
3bmom Posted December 7, 2013 Report Share Posted December 7, 2013 That's awesome! When I went to the ENT last year to make sure I didn't have strep and mentioned PANDAS he kept me there for an hour asking questions. He said he should of paid me for the visit! He commented that a lot of times their hands are tied for doing a tonsillectomy because they need a Pediatrician referral. Makes me wonder if part of the increase in kids issues is do to a change in medical practices. Tonsillectomy's use to be routine for childhood. Link to comment Share on other sites More sharing options...
nicklemama Posted December 7, 2013 Report Share Posted December 7, 2013 I took DS to an ENT early this year to discuss frequent nosebleeds because his allergist insisted he have a consult about them. I filled out the medical history. When the ENT came in, he immediately said"so you are here to get your PANDAS child's tonsils out". I nearly fell out of my chair. I couldn't speak for a minute. I had come with some PANDAS literature. I was hoping to just talk about the nosebleeds and not have to get into a PANDAS discussion, lol. Turns out, he is a huge advocate of removing PANDAS to tonsils. I have not taken him up on his offer because, as I told him, if it ain't broke don't fix it. If/when DS has another major exacerbation I'll be ready. He is following DS every four months. We see him again in a week. Link to comment Share on other sites More sharing options...
qannie47 Posted December 8, 2013 Author Report Share Posted December 8, 2013 Interesting the the ENT's are getting on board....makes sense. I am inspired by all your posts!!! Link to comment Share on other sites More sharing options...
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