frikfrak Posted October 14, 2013 Report Share Posted October 14, 2013 Hi, Called Dr. B but they said they do not take my insurance and even if I come in they are not doing IVIG right now and if they did my ins. wouldn't pay for it. They said they will put me on a waiting list if I want, supposed to call back. Can someone please give me another immunologists or another doc that does IVIG. LLMD thinks IVIG would be good for my DS. Nothing else has worked. thanks His Mom Link to comment Share on other sites More sharing options...
pr40 Posted October 14, 2013 Report Share Posted October 14, 2013 if you have a dr to order it, you can do it anywhere, even at home. the question is only of dosage. google services that do IVIG. It is a common procedure. what's difficult is to have it ordered and covered. Link to comment Share on other sites More sharing options...
PowPow Posted October 14, 2013 Report Share Posted October 14, 2013 Why are they "not doing IVIg" now? That is strange, i think. ChrissyD 1 Link to comment Share on other sites More sharing options...
frikfrak Posted October 14, 2013 Author Report Share Posted October 14, 2013 They said having a hard time getting it covered by insurance. Link to comment Share on other sites More sharing options...
Mayzoo Posted October 14, 2013 Report Share Posted October 14, 2013 Our Immunologist does IVIG, usually in his office. I will pm his name. For others, it may help to know where you are located. Link to comment Share on other sites More sharing options...
qannie47 Posted October 15, 2013 Report Share Posted October 15, 2013 I have heard that dosage is important when treating Pandas, it is a much heavier dosage I think..My ds was monitored the whole time by nurse and doctor. I am surprised that it is administered at home. Link to comment Share on other sites More sharing options...
peglem Posted October 15, 2013 Report Share Posted October 15, 2013 I have heard that dosage is important when treating Pandas, it is a much heavier dosage I think..My ds was monitored the whole time by nurse and doctor. I am surprised that it is administered at home. Usually when given at home, a nurse comes to administer and monitor the patient. Link to comment Share on other sites More sharing options...
PowPow Posted October 15, 2013 Report Share Posted October 15, 2013 Also,usually, a first dose would not be done in the home. At least that is how our doc does it. In some cases, she may order it at home, but only after successful infusion while being monitored. Link to comment Share on other sites More sharing options...
T_Anna Posted October 16, 2013 Report Share Posted October 16, 2013 We did it at home all three times. I spoke to a few doctors and a friend whose father had IVIG as part of his cancer tx. DS doesn't have asthma or any other complications so we felt secure having it done at home...especially since DS won't leave the house. T.anna Link to comment Share on other sites More sharing options...
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