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Posted

Hi,

 

Called Dr. B but they said they do not take my insurance and even if I come in they are not doing IVIG right now and if they did my ins. wouldn't pay for it. They said they will put me on a waiting list if I want, supposed to call back.

 

 

Can someone please give me another immunologists or another doc that does IVIG. LLMD thinks IVIG would be good for my DS.

 

Nothing else has worked.

 

thanks

His Mom

Posted

if you have a dr to order it, you can do it anywhere, even at home. the question is only of dosage. google services that do IVIG. It is a common procedure. what's difficult is to have it ordered and covered.

Posted

I have heard that dosage is important when treating Pandas, it is a much heavier dosage I think..My ds was monitored the whole time by nurse and doctor. I am surprised that it is administered at home.

Posted

I have heard that dosage is important when treating Pandas, it is a much heavier dosage I think..My ds was monitored the whole time by nurse and doctor. I am surprised that it is administered at home.

Usually when given at home, a nurse comes to administer and monitor the patient.

Posted

Also,usually, a first dose would not be done in the home. At least that is how our doc does it. In some cases, she may order it at home, but only after successful infusion while being monitored.

Posted

We did it at home all three times. I spoke to a few doctors and a friend whose father had IVIG as part of his cancer tx. DS doesn't have asthma or any other complications so we felt secure having it done at home...especially since DS won't leave the house.

 

T.anna

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