scared, confused, sad...please help

[loandmo]

About 2 weeks ago I started noticing my 4 1/2 year old son was doing some blinking. Nothing terrible just noticed by me and my husband. About 5 days later my daughter came down with what we thought was hand foot and mouth...she was sick for a few days. Three days after she was sick my son came home from school complaining of a headache and running a fever. The fever spiked and he had an awful awful headache. His fever wouldn't go under 103.2 with both tylenol and ibuprofen. The following day he had a fever...around 101 and then the next day it fell off. His class was exposed to hand foot and mouth and i thought "well...that is where it came from". So he was doing some blinking and that was about it and then yesterday his blinking was becoming more severe and seemed to be more frequent with a bit of a head turn. We called his ped and he said bring him in for a strep test. It was negative but he put him on 500mg of amoxicillin 3 times a day for 10 days. After one day his tic doesn't seema as severe...but it has moved from his left side of his head and to the right...tonight before bed it picked up just a little. The only other symptom I saw was yesterday he was sad. He is not showing any OCD issues yet. It is mainly the motor tic. Does this sound like PANDAS? Or is it maybe coinciding with a transient tic? Since we caught it early will his symptoms be easier to treat or should I expect things to get worse in the upcoming weeks. I feel so bad I can't help him. We are going to do BW once we are through with the ABX. But I am going crazy...

[Pilbara]

My heart breaks for you, I'm new to the whole tic behaviour as well, so I know where you are right now. When my son started off, it was with the hard blinking of the eyes and a grunt at the end of the sentence. It went away for 2 months and now we have new tics, particularly the complex vocal tics. I think the hardest thing is not knowing, will it get better, will it get worse, what is causing it. I think I've read so much information that I keep accessing the same sites over and over.

 

What I have found is that it is not healthy to know too much, I ceased being a member in some forums because it just caused me more sadness, anxiety and absolute fear. I'm also exploring autoimmune deficiencies, allergies, yeast overgrowth, nutritional deficiencies and Strep (PANDA).

 

Most importantly I'm now just trying to accept the tics and take it day by day and not stress too much about the possibilities.

 

As one person said to me, everything you find and the people in forums are about the now, there are many who have gone through the tics and had them subside over time. It will be a waiting game, everyone's storey is different and unique to only them, but hold on to the fact that the majority of tics are outgrown. It's what I keep trying to remind myself everyday.

 

In the meantime, remember that your not alone and people are here for you.

[loandmo]

Thanks so much. Today has been challenging. He was afraid to go to the grocery store and did a lot of crying and has developed this weird audible breathing tic. I called his ped and we are going in tomorrow to be seen and they think it is best if we make an appointment with a neurologist. It may take time to be seen so they think it is best to have an appointment just in case. I am so sick to my stomach. I feel like this connection we had is missing. Maybe it is just me being hyper sensitive but I feel like I am falling apart. Thanks for all of your help.