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loandmo

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  1. Has anyone ever seen a sibling of their PANDAS/PANS child seem like they were starting to exhibit symptoms and then they resolved themselves? My daughter every now and then I swear I see something, and then a few days it's gone. I mean it disappears without any intervention. Her clothes will bother her (slight sensory issues since birth) or she will just sort of be off. Like she's npt 100% there and then a couple days later she's just back to her normal self. We are day 10 of chicken pox and she is off (as I have posted elsewhere). We took her for a strep test. Negative. My pediatrician w
  2. Thank you so so much for your reply. I’m basically just sitting here waiting for the other shoe to drop. I’ve read so much about vaccine injury from the Varicella that I declined it hoping my kids would get it naturally. We decided if they didn’t have it by 10 we would vaccinate. We did get it naturally. My kids were exposed and my PANS floated through it. But then again he had a mild mild case (75 pox). She has probably 400-500. I don’t even know if severity would play into it. I do however appreciate you reminding me that it is a mild illness. Her sensory issues have kicked up a notch and sh
  3. Hi there, I have been here before with my 9 year old son who is PANS and doing tremendously. I am back to discuss my 5.5 year old daughter who is currently on day 5 of the chicken pox. She has had no Varicella booster. As my son did not either. My son came down with it and had a very mild case. Two weeks later my daughter broke out in the rash but hers was more severe. A little background to her...strong willed, tantrums, some sensory processing but nothing that we’ve had to seek treatment for. Obviously my fear is that this Illness is going to be the trigger for her onset and we are goi
  4. Thanks so so much...well....tics are back...started coming back on the amoxicillin which was so helpful in the beginning. I was so hopeful. We switched from Amoxicillin to Augmentin 2 days ago and tics are coming back stronger. He is grunting blinking and deep breathing with a shoulder shrug. Ped wants to do Augmentin for 3 months. Obviously if this doesn't work we will try something else...I am so incredibly exhausted and so terrified to read anything else. I am so scared that I am going to lose my little boy. Why is this happening?
  5. Well it's been a year...and this was my original post...7/2013 About 2 weeks ago I started noticing my 4 1/2 year old son was doing some blinking. Nothing terrible just noticed by me and my husband. About 5 days later my daughter came down with what we thought was hand foot and mouth...she was sick for a few days. Three days after she was sick my son came home from school complaining of a headache and running a fever. The fever spiked and he had an awful awful headache. His fever wouldn't go under 103.2 with both tylenol and ibuprofen. The following day he had a fever...around 101 and then
  6. Thanks so much. Today has been challenging. He was afraid to go to the grocery store and did a lot of crying and has developed this weird audible breathing tic. I called his ped and we are going in tomorrow to be seen and they think it is best if we make an appointment with a neurologist. It may take time to be seen so they think it is best to have an appointment just in case. I am so sick to my stomach. I feel like this connection we had is missing. Maybe it is just me being hyper sensitive but I feel like I am falling apart. Thanks for all of your help.
  7. Thanks so much. Today has been challenging. He was afraid to go to the grocery store and did a lot of crying and has developed this weird audible breathing tic. I called his ped and we are going in tomorrow to be seen and they think it is best if we make an appointment with a neurologist. It may take time to be seen so they think it is best to have an appointment just in case. I am so sick to my stomach. I feel like this connection we had is missing. Maybe it is just me being hyper sensitive but I feel like I am falling apart. Thanks for all of your help.
  8. what should I ask for when my child goes for his blood work? I just want to be prepared...
  9. About 2 weeks ago I started noticing my 4 1/2 year old son was doing some blinking. Nothing terrible just noticed by me and my husband. About 5 days later my daughter came down with what we thought was hand foot and mouth...she was sick for a few days. Three days after she was sick my son came home from school complaining of a headache and running a fever. The fever spiked and he had an awful awful headache. His fever wouldn't go under 103.2 with both tylenol and ibuprofen. The following day he had a fever...around 101 and then the next day it fell off. His class was exposed to hand foot and m
  10. About 2 weeks ago I started noticing my 4 1/2 year old son was doing some blinking. Nothing terrible just noticed by me and my husband. About 5 days later my daughter came down with what we thought was hand foot and mouth...she was sick for a few days. Three days after she was sick my son came home from school complaining of a headache and running a fever. The fever spiked and he had an awful awful headache. His fever wouldn't go under 103.2 with both tylenol and ibuprofen. The following day he had a fever...around 101 and then the next day it fell off. His class was exposed to hand foot and m
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