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Everything posted by Pilbara

  1. We have all been in your place. I think the onset of tics has to be the most stressful time in our lives due to the fear. I'm 6 years in with my son and all is good. His tics started when he was about 5 with hard eye blinking, but it was at 7 that it errupted with multiple motor tics and vocal. Highly likely you just have a motor tic and I do see these regularly in lots of kids, so no need to stress just yet. If you haven't picked up Sheila's book yet, then I highly recommend it. For my son his triggers were chemicals and high levels of aluminium in his body. Since we have tried ou
  2. Make sure you read Sheilas book at the top of the page, it will really help guide you through the investigation process. Also you need to spend time working through older posts on this forum and the pinned posts at the top are very helpful. For every child the triggers are going to be different. For many it is diet related, for my son it is primarily chemical sensitivity that sets off the tics. He also had toxic levels of aluminium in his system that we had to detox out of him, Sheila has a quote about the kids "have something in their body that they do not need, or something they need tha
  3. I'm so feeling for you right now. Try not to think about worse case scenarios right now, and your in the right place to get the best knowledge. ACN was life changing for me and I strongly believe my son's improvement was because of what I've learnt in here and through reading Sheila's book. Your right, your Pediatrician is unlikely to be of any help, but its great that your seeing a naturopath and allergist, they are more than likely to be the game changers. PANS/PANDAs may definitely be possibility so learn all you can to rule it in or out. I didn't think we had a genetic link to T
  4. The arrival of tics is the most difficult time and everything you read is likely to lead you to worse case scenario. I have a 9 year old who has had TS since he was 7, and just recently his 8 year old brother has developed a vocal tic. Make sure you grab a copy of Sheila Rogers book, I think everyone should start there. From my experience, my son's tics are caused from environmental factors. Heavy metal toxicity was definitely a factor and once the aluminium was completely removed from his system he has improved significantly. We made sure his nutrients were balanced and then started i
  5. Your getting close to the 12 month mark, and it is possible that you son has just the motor tics, doesn't sound like any verbals such as clearing the throat or various other sounds have presented yet. Regardless if it is motor tics or TS, I think a good place to start is with full blood work to check for any deficiencies and heavy metal hair testing. Getting their bodies in balance then gives you a good starting point. If you haven't read Sheila's book yet, then I recommend you read it, as it will help you work through the many possibility that could be your son's triggers. It is based on
  6. Ted, You will have to spend time reading the pinned posts in this thread, it will start you on the path of exploration. Sheila Rogers book was my lifesaver, not only did it give me hope with people's stories, but also tells you all possible clue's to start looking for the triggers. All kids with TS will be different, some it's food, some it environmental factors, you have to be willing to explore everything. For my son, he was toxic in Aluminium (yes lots of kids with TS have heavy metal toxicity issues) and predominately chemical sensitivity. I think we were lucky as the changes I
  7. Barbara That is such good news, I don't know where any of us would be if not for Latitude and Sheila, it was the best thing to ever happen for my son. When his tic erupted, it was such a difficult time for all of us and the medical profession and Tourettes Association here in Australia was of no use. I'm just thankful I found this site as it changed all our lives. Now I look back and I'm thankful for the TS, because now I have learned so much, have made many changes and we are certainly on a different path in life. Like you my son's tics are fairly non existent, still there from time to
  8. Sandra, Yes my son had toxic levels of aluminium that he could not cleans from his body. I have heard of various heavy metals in kids with TS, they must lack the ability to detox effectively and it builds up. However my son is now clear, we had him on Chelatox for about 18 months, slowly taking it out which is much safer to do otherwise it is free to roam in the body causing other harm. I also used Epsom Salt baths on a regular basis. Heavy metals also means you daughter is likely to be low on other nutrients in the body as the heavy metals will interfere with their absorption. My son'
  9. With the TV, you might like to try putting a Himalayan Salt Lamp in the room. Depends if it's the ions or flickering lights that are the trigger for your child, but the salt lamps turn the negative ions from electronic equipment and positively charge them. Here is a link to perhaps look at. Just worth a thought http://products.mercola.com/himalayan-salt/himalayan-salt-lamps.htm
  10. Try and find a biomedical or integrative doctors, they really try and find the route cause and not just treat the symptoms. Naturopaths are also a good place to start. My DS started with the hard blinking as well. I hated the head jerking phase. Definitely read Shiela's book recommended above. Other things to look at is heavy metal toxicity (tested through a hair sample). Have hope that lots of us with kids with TS do get significant improvement through natural treatment. My DS gets triggered off by certain chemicals in his food and particularly in the environment, but for the most part
  11. Just on what you have put up, have you ever worked with a Naturopath or Environmental/Integrated Doctors. It's important to find help from other that can help to direct you. You mentioned fragrance free, but are they chemical free products. How about your diet, although gluten free, do you eat any other processed foods? Sounds like you are starting to explore triggers but have not found what works for you yet. Don't get discouraged, you probably still have a long way to go to finding what works for you. Please don't give up, keep looking, follow the advice on this forum and read Sheil
  12. A good place to start is with a full blood test and hair analysis. This will identify any deficiencies in minerals and nutrients; plus the hair analysis will identify any heavy metal toxicity your daughter may have. I just used a Naturopath for this. Once you know her body is balanced, then you will need to look for possible triggers, be them in food or the environment. As Chemar has linked for you, Sheila Rogers book is brilliant in helping you identify triggers. I still continually review this book and it will certainly point you in the right direction. Other things is to start research
  13. That's excellent Vicki, it's wonderful to be getting some answers.
  14. Vicki, I know it's heart breaking to see our kids go through this. I'm more comfortable with my son's (also 9) tics now than in the beginning. I believe my son's tics are triggered by environmental factors, so we aim for a toxic free environment as possible. This also includes food as well as chemical exposure. You may like to go over to the PANDA thread's and have a read there as well, because I feel it may have some relevance for you with the sudden onset. You need to explore all possible triggers and learn about all possible causes for tics. There is so much information in the threads on th
  15. Welcome the forum. It is so hard in the beginning, so we know how you are feeling right now. This forum and it's members are so knowledgeable and most of us have experienced success in reducing the severity of our children's tics through natural alternatives. I cannot recommend Sheila's book enough, not only will it give you the tools to search out possible triggers, but the best part for me was also reading people's stories at the beginning. It gave me so much hope, where through searching the internet, it just drove me into more fear. I've written my experience under my profile, so
  16. When choosing air purifiers, you do need to take into consideration the size of the room. I definitely went overboard as far as mine went, but I'll put a link to it anyway, mainly so you can see the benefits I was looking for in a machine, which was primarily VOC removal. http://aircleanersaus.com.au/main/page_iqair_gc_multigas.html This brand of machine IQ Air is likely to be available in your country. You may also want to add in a humidifier if the air is too dry, also lovely to add some essential oils. I am in the market for a small air purifier myself for our caravan, so will le
  17. It's funny reading your story, because something can be so similar. My TS son started with the hard blinking tic way before the more sever tics arrived, just as you described. He was also the reflux baby that almost drove me to breaking point because he would not sleep. The advice above is awesome and we know about the brain/gut connection. I'm sure based on what you've written, you are going to see some great results. Also think about chiropractic care. I definitely think it makes a difference to my son. So to give you some encouragement, I also followed the advice in Sheila's book and I
  18. We so understand how you are feeling, sounds like you might even be handling it better than me, I was an irrational mess in the early days. But with time it does get better as you come to learn more about tics and TS. All the information above is excellent and will start you off learning about possible triggers. I would also add that heavy metal analysis through a hair sample may also be beneficial. For my son, I've narrowed his triggers down to be reactive to chemicals, so I control as much as I can which has been fairly easy. Chemicals in food as mentioned about it also targeted as part
  19. 7 seems to be that magic age for many kids, mine included. At first when my son's tics were mild, just hard eye blinking and like most parents were told not to be concerned, then one school holiday it exploded with both vocal and motor tics. It was such a shock and I think I was a blubbering mess for a couple of week. I became obsessed in researching and understanding what Tics and TS were all about, unfortunately you will come across such severe cases that it will scare the pants off you. My anxiety finally came under control when I found this forum. Thankfully my son tics were worse i
  20. Welcome to the forum, it's an amazing place with so much information, finding it was the best thing to ever happen to me and has sent me on a real journey into health. My son's tic were at their worse when we moved into a brand new home. You are doing the right thing with the air filter and opening the house up. Lots of interesting information out there on Volatile Organic Compounds(VOC)which are in everything in our houses from paint, cupboards, carpets, you name it. They do take a long time to clear unfortunately, just keep doing what you are and help your son detox the chemical build u
  21. All of my son's supplements come in power form, Naturopaths normally carry powder lines. Most of his seem to have a citrus flavour, so I mix them with some pineapple juice. I use the Neways probiotic, it has 30 billion strains and it totally dissolves in water with no taste or grit. There will always be products in your country that will be easier to take.
  22. The breathing tic is not an unusual one, we have also gone through it. It's only lasted a couple of weeks each time. There is no logic to the tics, some last longer than others, thankfully it was short for us as it did affect my sons speech.
  23. If you follow the rule "what does her body have that she does not need and what does she need that she does not have". From your post you have done a lot of dietary and environmental changed, so you may need to look if she has any deficiencies. If you have not already done so, getting nutritional and mineral analysis done may be beneficial. It's a blood test and hair analysis. From our perspective once my son's body got better nutritional balance based on his tests, his tics have been extremely minor and not really noticeable to anyone else around him.
  24. Welcome to the forum, it will be the best place to find lots of answers and things to investigate. My son's tics became very noticeable at aged 7, but on reflection he had they hard eye blink tic earlier. He developed vocal and motor tics. They were at their worse last year when I went searching for answers and landed here, which I am so thankful for. Following the advice here and reading Sheila's book "Natural Treatment for Tics and Tourette's" has been extremely helpful. We completed hair analysis and my son was toxic in Aluminium, which does lodge in the central nervous system and brai
  25. Sounds a lot like my son, I'm the worst Mum in the world if he doesn't get his own way, he cries at the drop of a hat and has just started slamming doors. All very normal in my world. I've read Steve Biddulph book Raising Boys. He has a webside www.raisingboys.com.au there are some interesting articles you may want to go through. It's an Australian site, but no doubt useful to boys around the globe.
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