browneyesmom Posted May 23, 2013 Report Share Posted May 23, 2013 Has anyone seen significantly dropping WBC & Neutrophil counts (neutropenia) in their PANDAS child? If so, were docs able to determine the cause? Link to comment Share on other sites More sharing options...
Hopeny Posted May 23, 2013 Report Share Posted May 23, 2013 Yes I've had this issue. One kid has borderline we think caused by infection and meds and my 3 to had a scary severe drop brought on by an allergic reaction to bactrim. How low is WBC and ANC in regards to the range? Link to comment Share on other sites More sharing options...
Debbie1 Posted May 23, 2013 Report Share Posted May 23, 2013 Yes, we experienced this. On our case it was due to long term use of full strength augmentin plus the short term effects of ivig (which temporarily lower neutrophil counts). We cut the augmentin dose in half to a prophylactic dose and the counts returned to normal. We now monitor WBC and neutrophil counts periodically and before every infusion. Link to comment Share on other sites More sharing options...
sf_mom Posted May 23, 2013 Report Share Posted May 23, 2013 I've known several children with chronic infections (specifically Lyme et al) that this has happened. Oftentimes antibiotics are suspended until things normalize. Link to comment Share on other sites More sharing options...
tpotter Posted May 24, 2013 Report Share Posted May 24, 2013 Happened to my son, and it was babesia. After treating with IV abx, it improved. Also, his liver enzymes had gone up. Connie 1 Link to comment Share on other sites More sharing options...
Tattoomom Posted May 24, 2013 Report Share Posted May 24, 2013 My daughter had Autoimmune Neutropenia before PANDAS. Link to comment Share on other sites More sharing options...
browneyesmom Posted May 25, 2013 Author Report Share Posted May 25, 2013 There are multiple possibilities in her case, as are being mentioned here... I think we are likely to wind up at Hematology to evaluate, if they don't improve as we monitor them. Her numbers are below normal... not quite severe; but, moderately low, Hopey. Thanks for the input! Link to comment Share on other sites More sharing options...
Hopeny Posted May 25, 2013 Report Share Posted May 25, 2013 browneyesmom please keep updating, I am curious about this topic as well. Our integrative said many of her patients have borderline ANC and WBC. We are beefing up our protocol to try to address. When DD3 had the emergency, the immunologist we saw said he is comfortable with ANC >500 FWIW. Under that is "boy in the plastic bubble" time. Link to comment Share on other sites More sharing options...
SSS Posted May 25, 2013 Report Share Posted May 25, 2013 (edited) Transfer Factors can help. I took Reserched Nutritionals multi- immune transfer factors during treatment- Recently, had blood work done, (been off antibiotics and herbs 4 months now) and my WBC was just under normal- surprised me, they were never low during treatment. But I am feeling run down (been pushing it/overdoing) and yeast has cropped back up (got lazy on diet- yeesh) So bought some RN transfer factor (without mushroom) for immune system help. Have also heard the 4life brand is good, but I trust the Researched Nutritionals brand to be clean. Edited May 25, 2013 by S & S Link to comment Share on other sites More sharing options...
browneyesmom Posted June 6, 2013 Author Report Share Posted June 6, 2013 We're monitoring them weekly. Her WBC are hovering below normal range and her ANC just bumped up (barely) into the normal range this week. Woot! She still has a way to go; but, I'm thankful for progress! Link to comment Share on other sites More sharing options...
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