frikfrak Posted May 15, 2013 Report Share Posted May 15, 2013 Hi, Was just wondering if there is a supplement or herb or anything that you give your child to help them when they are having an increase of symptoms, whether that's tics or behavior. Something to calm them (symptoms) down. thanks Link to comment Share on other sites More sharing options...
Teri Posted May 15, 2013 Report Share Posted May 15, 2013 Have you tried Ibuprofen ? That is the advice we are given by our PANDAS doc. Dose it several times per day. Link to comment Share on other sites More sharing options...
JoyBop Posted May 15, 2013 Report Share Posted May 15, 2013 I am wondering the same thing myself. We saw a new psychologist that has worked with many PANDAS patients and he said that Intuniv has been very helpful for his patients, although did not recommend we start anything new at this time as we are still getting the Prozac out and the antibiotic in. For those of you that treat with ibuprofen, have you ever seen evidence in blood labs of inflammation? We checked our sons SED rate and it was normal. Would ibuprofen still be recommended for symptoms? Link to comment Share on other sites More sharing options...
Mayzoo Posted May 15, 2013 Report Share Posted May 15, 2013 The supplement would depend on the specific symptom. I give Lemon Balm to reduce nightmares, mild OCD, and anxiety. For her vocal tic, I give IBU or tylenol (not sure why tylenol works, but it seems to work well). Sometimes her vocal tic is related to slightly elevated fever, but not usually. For crying jags, I give hugs, a wet paper towel, soothing words and sometimes a benadryl. For severe hyperactivity, I give a benadryl, melatonin, or a "sleep relax" (http://www.amazon.com/Natural-Factors-Sleep-Capsules-90-Count/dp/B00028P81Q/ref=sr_1_1?ie=UTF8&qid=1368640797&sr=8-1&keywords=sleep+relax) capsule if we are not at home. For severe sound sensitivity I usually give a benadryl and if that is not enough, I give a lemon balm or sleep relax capsule as well. At home, I usually ride it out. We do play therapy with stuffed animals to try to work out certain issues. Link to comment Share on other sites More sharing options...
nicklemama Posted May 15, 2013 Report Share Posted May 15, 2013 Sed rates are not the be all end all. I have rheumatoid arthritis and I've never had an abnormal sed rate, so a normal sed rate is not indicative. An abnormally high one is. I had been giving ibuprofen. It does work. I started DS on Enhansa a bit more than 3 wks ago and Ive seen positive results, so far. Link to comment Share on other sites More sharing options...
JuliaFaith Posted May 16, 2013 Report Share Posted May 16, 2013 ProCalm is something that my son takes before bed. It has a probiotic and zinc and gamma Amino. My dh loves this stuff too. WWW.sedonalabspro.com Link to comment Share on other sites More sharing options...
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