kidneys: hydronephrosis

[thenmama]

Does anyone have experience with this, or knowledge to share? Any other PANDAS kids been dx'd with this? Apparently one of its causes is Neurogenic Bladder.

 

TIA

[BoyIowa]

My ds was diagnosed with this in utero. He had to be checked every year. The year before his onset, we received confirmation that the hydronephrosis was gone. I wonder if it could come back. We are having GI issues now.

[thenmama]

Thanks for the reply. We'll be seeing a nephrologist later this week, though I'm not really expecting the doc to know much about possible connections to PANDAS. Dd's urinary symptoms have coincided with PANDAS flares, and when I saw neurogenic bladder listed as one of the causes (when the condition isn't congenital), it made me wonder about the relationship, or possibility of a relationship. If I do learn anything about this I'll let you know what I find out.

 

Sorry about your kiddo's GI issues. Hope you find relief soon!

[BoyIowa]

Any info is appreciated.

We tried removal diets for tummy pains with no substantial results. Now attempting Prilosec. Next step is testing; probably endoscopy. Trial off abx to heal gut - PANS symptoms have been manageable so far. Ds just wants it all to go away.