thenmama Posted April 28, 2013 Report Share Posted April 28, 2013 Does anyone have experience with this, or knowledge to share? Any other PANDAS kids been dx'd with this? Apparently one of its causes is Neurogenic Bladder. TIA Link to comment Share on other sites More sharing options...
BoyIowa Posted April 29, 2013 Report Share Posted April 29, 2013 My ds was diagnosed with this in utero. He had to be checked every year. The year before his onset, we received confirmation that the hydronephrosis was gone. I wonder if it could come back. We are having GI issues now. Link to comment Share on other sites More sharing options...
thenmama Posted April 29, 2013 Author Report Share Posted April 29, 2013 Thanks for the reply. We'll be seeing a nephrologist later this week, though I'm not really expecting the doc to know much about possible connections to PANDAS. Dd's urinary symptoms have coincided with PANDAS flares, and when I saw neurogenic bladder listed as one of the causes (when the condition isn't congenital), it made me wonder about the relationship, or possibility of a relationship. If I do learn anything about this I'll let you know what I find out. Sorry about your kiddo's GI issues. Hope you find relief soon! Link to comment Share on other sites More sharing options...
BoyIowa Posted April 29, 2013 Report Share Posted April 29, 2013 Any info is appreciated. We tried removal diets for tummy pains with no substantial results. Now attempting Prilosec. Next step is testing; probably endoscopy. Trial off abx to heal gut - PANS symptoms have been manageable so far. Ds just wants it all to go away. Link to comment Share on other sites More sharing options...
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