trintiybella Posted March 26, 2013 Report Share Posted March 26, 2013 Has anyone ever used this alone for PANDAS and had any success? Link to comment Share on other sites More sharing options...
NYCMom Posted March 26, 2013 Report Share Posted March 26, 2013 We used Amox as a prophylactic for two years. We stopped prophylactics last year and now use omnicef (cefdinir) whenever ds has strep (2x). It seems to work great for us, PANDAS symptoms start to recede within 24 to 48 hours. Link to comment Share on other sites More sharing options...
trintiybella Posted March 26, 2013 Author Report Share Posted March 26, 2013 did you see a lot of yeast when you started this? did you start full dose? thanks Link to comment Share on other sites More sharing options...
michiganpandas Posted March 26, 2013 Report Share Posted March 26, 2013 this has worked the best with us so far....I am also trying to treat with this only when symptoms pop back up Link to comment Share on other sites More sharing options...
beeskneesmommy Posted March 26, 2013 Report Share Posted March 26, 2013 We started w/Augmentin which helped but only so far. Then we put our son, then age 4, on Omnicef. This worked very well for about 4 months, then he started having increased flares. What made the huge difference was the combo of Augmentin and Azith, which he has been on for almost 2 years straight. Link to comment Share on other sites More sharing options...
jtp Posted March 26, 2013 Report Share Posted March 26, 2013 My DS has been on Azithromycin since May 2012. In January 2013 our Dr added Cefdinir(Omnicef) for a sinus infection. My son is allergic to amoxicillin and the Dr said he may or may not be allergic to Cefdinir. We only gave it to him for 3 days because his anxiety grew worse with each dose. I'm not sure if that was an allergic reaction or an intolerance. But I have read that others have had a good experience with it. Link to comment Share on other sites More sharing options...
airial95 Posted March 27, 2013 Report Share Posted March 27, 2013 My daughter only uses cefdinir (omnicef) and we have great success with it. She takes full dose - but typically for only 30 days and she pulls out of a flare quickly. My son (who is a severe case) was on azith for 9 months with limited success, then switched to cefdinir (omnicef) for 11 months prior to switching to augmentin for 8 months to a combo augmentin/azith for 4 months, adding rifampin for 60 days (tested positive on combo), tried cipro for 30 days - but no back on Augmentin/azith/rifampin combo (second month on it this time around). My son has continued to test positive on abx, which is why we've had to keep rotating. The augmentin/azith/rifampin supercombo is the only thing he has not tested + on. We are headed for our first IVIG next week - so I'm not sure I'd use him as a good example! Link to comment Share on other sites More sharing options...
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