lfran Posted March 9, 2013 Report Posted March 9, 2013 My ENT turns out to be very interested in PANDAS. I remember someone posting a few months ago about a really good ENT (in Philadelphia?) who has a good PANDAS protocol. Can you PM the contact info for any ENT who really understands PANDAS, anywhere in the country? I'd like to give that contact info to my ENT. Maybe they can talk doctor-to-doctor. I'd love for my doctor to know more, and to be aware of the protocols that work, especially for tonsillectomies. Thanks!
Ebersolk Posted March 9, 2013 Report Posted March 9, 2013 My ENT turns out to be very interested in PANDAS. I remember someone posting a few months ago about a really good ENT (in Philadelphia?) who has a good PANDAS protocol. Can you PM the contact info for any ENT who really understands PANDAS, anywhere in the country? I'd like to give that contact info to my ENT. Maybe they can talk doctor-to-doctor. I'd love for my doctor to know more, and to be aware of the protocols that work, especially for tonsillectomies. Thanks! I would be interested in this ENT near Philly info also. Thanks! Kerry
lfran Posted March 10, 2013 Author Report Posted March 10, 2013 Bumping this, hoping that the previous poster who had a great ENT experience will share the doc's info. Thanks.
airial95 Posted March 11, 2013 Report Posted March 11, 2013 Don't know about the ENT in Philly - but ours took out both of my PANDAS kids tonsils - my daughter's b/c of PANDAS only (didn't have as many strep infections as they ususally "like" to do a T&A). He did the abx protocol - before-during-after, although he only gave 7 days abx post (our ped and Dr. M extended that for my son, thankfully!!) His name is Dr. Wade Cressman, this is the website. I know Dr. T has a detailed protocol that he tells his patients to request for T&A - but I don't know what it is.
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