Broo100 Posted February 15, 2013 Report Share Posted February 15, 2013 My ds 10, was diagnosed with PANDAS in the fall when he had a double infection of Mycoplasma and Strep. He was put on two antibiotics and is practically back to "normal". In the interim, his sisters have had strep and he has not worsened by being around them. Before his diagnosis, he also had strep but never but never displayed Pandas symptoms. My questions are could his trigger be Mycoplasma specific and not strep or is it more likely that he has fought off both infections and that his body is able to withstand being around others with strep? thoughts? Also, is Mycoplasma like Strep in that one can get it repeatedly? Thank you in advance Link to comment Share on other sites More sharing options...
kimballot Posted February 15, 2013 Report Share Posted February 15, 2013 My ds 10, was diagnosed with PANDAS in the fall when he had a double infection of Mycoplasma and Strep. He was put on two antibiotics and is practically back to "normal". In the interim, his sisters have had strep and he has not worsened by being around them. Before his diagnosis, he also had strep but never but never displayed Pandas symptoms. My questions are could his trigger be Mycoplasma specific and not strep or is it more likely that he has fought off both infections and that his body is able to withstand being around others with strep? thoughts? Also, is Mycoplasma like Strep in that one can get it repeatedly? Thank you in advance Yes - your child can have an exacerbation with ANY infection... which would be considered PITAND or PANS - not specifically PANDAS. Mycoplasma is a common problem. I don't know about "typical" kids, but kids on this forum have had mycoplasma more than once. Link to comment Share on other sites More sharing options...
Broo100 Posted February 15, 2013 Author Report Share Posted February 15, 2013 But wouldn't it be unusual if Strep and other infections did not trigger it and specific infections like Myco did? Is this unusual (as far as there is any rhyme or reason to this complicated condition) Link to comment Share on other sites More sharing options...
MamaOnAMission Posted February 15, 2013 Report Share Posted February 15, 2013 Can I ask if you did the Cam Kinase and what your number was? If its high, doesnt that mean PANDAS? Link to comment Share on other sites More sharing options...
3boysmom Posted February 15, 2013 Report Share Posted February 15, 2013 Did he happen to get the flu shot as well? Link to comment Share on other sites More sharing options...
Broo100 Posted February 15, 2013 Author Report Share Posted February 15, 2013 Dr T recommended against getting flu shot. I am not sure if dr t did the cam kinase. I assume that is a test? Link to comment Share on other sites More sharing options...
3boysmom Posted February 16, 2013 Report Share Posted February 16, 2013 (edited) Good, I'm glad you know about the caution of vaccinations! Dr. Cunningham has " the Cunningham test" (Cam Kinase) that many of us did for her research. Her lab will open soon. You can find out more on: pandasnetwork.org website. Edited February 16, 2013 by 3boysmom Link to comment Share on other sites More sharing options...
kimballot Posted February 16, 2013 Report Share Posted February 16, 2013 My ds 10, was diagnosed with PANDAS in the fall when he had a double infection of Mycoplasma and Strep. He was put on two antibiotics and is practically back to "normal". In the interim, his sisters have had strep and he has not worsened by being around them. Before his diagnosis, he also had strep but never but never displayed Pandas symptoms. My questions are could his trigger be Mycoplasma specific and not strep or is it more likely that he has fought off both infections and that his body is able to withstand being around others with strep? thoughts? Also, is Mycoplasma like Strep in that one can get it repeatedly? Thank you in advance sorry - I did not read your initial post thoroughly enough! Is your son still on antibiotics? It is possible that his initial reaction was to mycoplasma and / or strep... hard to know which or if it was both, I would think.. No subsequent exacerbations with strep exposure... great! Not everyone has an exacerbation with exposure. It does not mean that the initial trigger was mycoplasma. Link to comment Share on other sites More sharing options...
Broo100 Posted February 16, 2013 Author Report Share Posted February 16, 2013 Thanks Kimballot. I guess I will find out the next time he gets step. I do not have him on any antibiotics for now. I may be pushing it but I am trying to give the bacteria in his guy a break. He has been off them since Xmas. We'll see Link to comment Share on other sites More sharing options...
kimballot Posted February 16, 2013 Report Share Posted February 16, 2013 Thanks Kimballot. I guess I will find out the next time he gets step. I do not have him on any antibiotics for now. I may be pushing it but I am trying to give the bacteria in his guy a break. He has been off them since Xmas. We'll see I hope you are one of the true success stories - one exacerbation caught early and properly treated. That would be great!!! That is what I hope for for all of our kids one day! Link to comment Share on other sites More sharing options...
Broo100 Posted February 16, 2013 Author Report Share Posted February 16, 2013 I live in fear that the other shoe is about drop Link to comment Share on other sites More sharing options...
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