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Broo100 last won the day on January 10 2016

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  1. Thanks. Did it settle after the growth and puberty set in?
  2. Hi everyone, my son, 14, has been doing quite well but he has been going through a huge growth spurt since the summer. He has been tic-ing quite a bit and does not seem to have any infections. These tics don't seem to be accompanied with any stress or anxiety. Just blinking and head jerking but does not seem to bother him. I wonder if the growth spurt itself could be inflammatory. Any thoughts?
  3. Hi there. I have not been around for a while but my son has been diagnosed 3 times in a row with strep A and can cannot seem to shake it off. Does anyone have any experience with this? What antibiotic did you use? Thanks
  4. several rounds of Biaxin. It was a tough medicine to take. Lots of herxing
  5. Rowing mom, I am sure you know this but as my orthodontist explained to me, braces create an inflammation to allow for the expansion and movement of teeth and jaw into the right place. My son sounds very similar to your DD. He also started ticcing a ton with dental work. Poor kids! As far as antimicrobials I don't think we ever took any but we are a mediterranean household and add garlic to everything so that, I'm sure, helps. I think that, while he was in his big flare, many things would trigger him, specially sugar (immediately) and gluten. Not sure about milk. As he starting to steady himself he was able to incorporate those back. Olive oil is our base fat. Fish oil, which seems helpful to many kids was terrible for his tics. If his tics were speially bad Motrin always helped. It was clear to me that I needed to tackle the inflammation. Good luck Rowing Mom!
  6. alyonushka, there is a specific test for Mycoplasma. My doctor did a full panel of tests including strep, mono, lyme, coxsackie, mycoplasma... i was not able to tell any symptoms of mycoplasma except, after it went away my ds was much more calm, focused and steady.
  7. Sure. He takes hyper biopics PRO 15 (little round ones) and he loves Yakult. The antiinfkammatories are enhansa repair. Coxsackie was a big trigger too. He had that around 18 months ago. It resolved quickly after the right medicine (can't remember what it was). When he was in his initial flare both sugar and gluten were terrible for his symptoms. Now he can take both with no problem. I try to keep a relatively gluten free diet at home but out the the house is not really monitored. Another thing, I found that fish oil made things worse so I stay away from it and make sure he eats non Mercury real fish a couple of times a week. Good luck. The parents in this board are smarter than any doctor. I am so grateful for their guidance.
  8. Hi everyone, I have not posted in a long time but I wanted to come back and give an update as this site was a lifesaver for me and my family. My ds was diagnosed at 10 with PANDAS which manifested in horrible vocal and physical tics, OCD and over the top anxiety. He had two main infections at the time Strep and Mycoplasma. I don't want to jinx it but my son is now 13th and completely back to normal. No antibiotics, just a daily dose of natural antiinflammatories and probiotics. He also takes allergy shots as his seasonal allergies were also a trigger. He is thriving at school and out of school. I still watch him like a hawk whenever he has a cold or has a moody day but he seems very steady and strong and calm. He may actually be able to go to boarding school for high school which has been a long dream of his and I never thought would be possible. In retrospect, killing the strep was easy, killing the myco was very hard. Dealing with the allergies was the final step of the puzzle. I was lucky with great doctors. Good luck to everyone, There is light at the end of the tunnel. I hope that as he hits puberty (he is a late bloomer) I will stop worrying. I know that i never will but that is my hope.
  9. Just when I thought my 12 ds was out of the woods he started with some strange behaviors and anxiety. No strep, no infections that I could detect. Then, boom! Stomachache that gets worse and Turns out he has appendicitis. They blast him with antibiotics, they operate him and he is back to his cool self 2 days after. This Condition will never stop to amaze me. The good news is that everyone in the hospital was knew what pandas was (NYU) and were curious but matter of fact. What a difference a couple of years make!
  10. Absolutely yes. I am certain that myco was the big trigger for my son (even if he also had strep at the time too). It was only after the myco was gone (2 years later) that his good mood returned. It was hard for me to assess if he was in an adolescence moody state or if it was pandas. After the myco was finally gone he was so much calmer and positive. It was very gradual.
  11. What a timely post! My son just started getting those three weeks ago. His seasonal allergies were triggering his pandas. He tested extremely allergic to several pollen and weeds allergens. He has not had any adverse reactions to the shots. I will let you know how things look in the spring but so far so good
  12. Hi everyone. My 12 to son had a neuropsych evaluation and all sort of interesting things popped up. He has Inattentive add (without hyperactivity). His test results go from 50% on untimed to 98% timed. The two official dianoses for the DOE are Specific Learning a Disorder with impairment in reading and Provisional tic disorder to cover his PANS. HIS school is going to offer him more time in his exams which is going to really help as well as targeted support. The neuro lady suggested that, In the future, we may want to consider some adhd medication. She has no background in pandas. My question is, do these type of medications worsen pandas symptoms? He is doing great and off all medications now but infections trigger the cycle again. His triggers are strep, coxsackie and myco (maybe more but so far these). He is asymptomatic when infections are clear. Thanks
  13. My son tested negative for lyme but we are fighting myco. I wonder if we should keep looking for lyme somehow
  14. Thanks. Does anyone have a good recommendation for a doctor in manhattan?
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