laure Posted February 14, 2013 Report Share Posted February 14, 2013 We are headed to Rothman on Monday for the February school break (18th - 22nd), staying at the Ronald McDonald House. Dd 12 scheduled for 5 days of intensive work with Dr.Rahman. Diagnosis is OCD caused by PANDAS July 2010, Igenex positive for lyme, probably since age 5. High lead, tungsten, low thyroid. Just finishing 4 months of IV abx. IVIG in August. Is there any advice out there about information we should be bringing along, labs, etc? They didn't send us anything at all in the way of preparation or what to expect. Will they do medical work when we are there or should we request that? Will anyone else be there? Fingers crossed that we will make an inch of progress! Link to comment Share on other sites More sharing options...
philamom Posted February 14, 2013 Report Share Posted February 14, 2013 Praying for you guys!!! Link to comment Share on other sites More sharing options...
TaraB Posted February 22, 2015 Report Share Posted February 22, 2015 I also have had high Tungsten pevels and also received IVIg. Just was wondering what brand of IVIg your child received? Thanks, Link to comment Share on other sites More sharing options...
pr40 Posted February 23, 2015 Report Share Posted February 23, 2015 you may want to search older posts if you haven't done that already. i think I remember some a few years back. you can also try to contact their authors directly. Link to comment Share on other sites More sharing options...
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