My daughter Please some advice

[michaelct]

Hello my name is michael, I live on long island

I am 31 i was diagnosed with ts when i was very young.

My daughter started clearing her throat about a year ago but it went a way until about a month ago.

Now she is clearing her throat constantly along with clinching her fist.

My uncle and grandfather both had ts.

I just need to know where should I start.

 

Also how do parents deal with this. I have cried every day for a month, because i know what she will probably go through.

[Chemar]

Hi Michael and welcome

 

I can understand your feelings, and I know our other members do too

 

We do also have other parents here who have TS themselves and are now working to help their children so you are not alone in that aspect either.

 

My husband and youngest son have genetically inherited Tourette Syndrome

Although there are additional challenges when dealing with inherited TS as opposed to acquired tic disorders, yet there are also many many things that you can do to help to improve your daughter's prospects in living with the tics and other issues that TS brings

 

I can offer you much encouragement! Even tho my son's TS manifest very dramatically and severely around his 10th birthday (likely had tics earlier, we just didnt realise it and my husband didnt realise he had TS till our son was diagnosed).........anyway, my son is now nearly 17 and TS is no longer the debilitating disorder it once was for him

We did try meds for a year, but that was a big mistake as my son had very severe side effects from them

 

thankfully, my online research led me to find hope and help in the form of alternative treatments and that is primarily why I am here, to offer encouragement to others.

 

I have documented our treatment protocol here

http://www.latitudes.org/forums/index.php?showtopic=687

and I recently did an update on it at NeuroTalk

http://neurotalk.psychcentral.com/showthread.php?t=1144

 

and there are also many other threads here on the forum of what other members have found helpful

 

I would also recommend that you also spend time reading the excellent articles on TS on the main Latitudes/ACN website here http://www.latitudes.org

 

and I cannot speak highly enough about the excellent book written by our administrator, Sheila Rogers, on Tic & Tourettes:Breakthrough Discoveries on Natural Treatments, in which she carefully documents available treatments and logs personal stories of what people have found beneficial

http://www.latitudes.org/book.html

 

Michael, from the words in your post I get the feeling that maybe having TS has not been an easy road for you My husband had a really hard time as a child, being ridiculed and punished for his "bad habits" which he now understands were tics and OCD

However, the wealth of information and knowledge about TS and what can help is so much greater now and so I do want to encourage you again not to feel too despondent at the realisation that your daughter has likely inherited the TS gene

 

Here are some good website links to also help you gain general info on TS

 

Tourette Syndrome Plus

 

Life's A Twitch

 

and

The Tourette Syndrome Association

 

also, I would like to point you to something written by a friend of mine, that really gives a good perspective parenting a child with Tourette Syndrome. Although we can and should do whatever we can to improve their quality of life and introduce treatments and adaptations that can aid in helping their tics not debilitate them or "take over" their lives, yet, understanding that, for people with TS, It's OK To Tic, also brings with it a whole new way of looking at things

Here is my friend Lara's post

http://neurotalk.psychcentral.com/showthread.php?t=1486

 

 

I hope you will start reading around our forum here, Michael, and also ask questions every time you find anything you need more info on

 

Plus, always know, that we are here for you. It is so important to have a support group that understands and where you can learn, share, vent or just get a (((Hug))) when you are feeling low

 

again.........welcome!