SurfMom Posted January 22, 2013 Report Posted January 22, 2013 The night she was diagnosed, DD15's EEG was normal. Today, three months later, we have a an abnormal result..... Anyone else? We are now pursuing other causes of encephalopathy.
911RN Posted January 23, 2013 Report Posted January 23, 2013 Do you have specifics on the abnormality. We have had abnormal EEG. DS12 takes Lamictal for it. I went down that road for many years before discovering PANDAS. Ours was spike and wave activity sleep activated in temporal lobes. He has dx of LKS from that, although, much of PANDAS fits with same time onset.
albmum Posted January 23, 2013 Report Posted January 23, 2013 MyDS 9 has an abnormal Eeg .but MRI was ok. It was abnormal since 5years old when we did Eeg for the first time. Reason of doing eeg was problems in speaking ,which lasted for two weeks and then vanished. I belive that was the first symptom of pamdas.Two years later he was diagnosed with pandas. For the problems in Eeg gavr depakin chrono,which I never gave to my son.
albmum Posted January 23, 2013 Report Posted January 23, 2013 For the abnormal eeg the neurilogist prescribed depakin chrono.I never gave it to my son because the diagnose never convinced me,epilepsy.
SurfMom Posted January 23, 2013 Author Report Posted January 23, 2013 First, the background shows a low amplitudes fast activity. Low enough they had troubled counting the frequency. Some semi-rhythmic delta waves in the frontal region. All this supports her very poor processing speeds and that she has mild encephalopathy. Moving now to the next level of trying to determine causality or more likely, playing the process of elimination game. There is no evidence of seizures.
dfw Posted January 23, 2013 Report Posted January 23, 2013 I think every child with PANDAS symptoms should have an EEG. My child's first EEG, about 2 months after PANDAS hit was normal as well. She has since had four abnormal ones. She was having absence seizures, and we had no idea until they did a 24 hour EEG and recorded over 25. We were with her the whole time and were certain she was not having seizures. We even took her to another neuro office because we were not convinced and did not want to start seizure meds. Absence seizures are so subtle, we were missing them. Our child would stop mid-sentence just for a second. Or glance briefly up as if trying to collect thoughts. Those were seizures. The second neuro pointed out one that happened while at his office, so we started to recognize them after that, though we still usually can't say for sure. We have noticed that the seizures seem to come and go with the PANDAS symptoms. I would be interested to know what additional testing other kids with abnormal EEGs are having.
tpotter Posted January 23, 2013 Report Posted January 23, 2013 DS17 also has seizures, but 2 neurologists believe, now that they are due to PANS. I agree. He is on 2 anti-seizure meds.
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