I think every child with PANDAS symptoms should have an EEG. My child's first EEG, about 2 months after PANDAS hit was normal as well. She has since had four abnormal ones. She was having absence seizures, and we had no idea until they did a 24 hour EEG and recorded over 25. We were with her the whole time and were certain she was not having seizures. We even took her to another neuro office because we were not convinced and did not want to start seizure meds.
Absence seizures are so subtle, we were missing them. Our child would stop mid-sentence just for a second. Or glance briefly up as if trying to collect thoughts. Those were seizures. The second neuro pointed out one that happened while at his office,
so we started to recognize them after that, though we still usually can't say for sure. We have noticed that the seizures seem to come and go with the PANDAS symptoms.
I would be interested to know what additional testing other kids with abnormal EEGs are having.
