Claire Posted October 26, 2006 Author Report Share Posted October 26, 2006 Hi Chemar, I did see your post, but thanks for telling me because I was not reading that thread until recently. I had not realized that your son had Crohn's disease, I am so sorry! I had to look it up just now. I just hope you can tackle the Crohn's the way you did the TS. Good luck. I remember reading years ago that the vaccines themselves (not just thimerisol) contributed to autism. I had sort of tabled that thought process about their impact on tic syndromes, since I thought we were finished with our 'standard' vaccines, so it was moot anyway. Also, in spite of my apparent calmness about it, the whole vaccine discusssion is so abhorent to me in the criminal negligence involved in the medical communities concerted denial of any correlation to harm to children, that I usually avoid reading, thinking and posting about it! Though it is good that folks here (Kim especially!) let others see the research. Claire Link to comment Share on other sites More sharing options...
Chemar Posted October 26, 2006 Report Share Posted October 26, 2006 Hi Claire yes, the crohn's dx only came this past summer after a while of digestive distress and misdiagnosis. A colonoscopy finally revealed the Crohn's altho the docs again wanted meds (the side effects of which made me absolutely infuriated...I mean, you wont have inflammation but you may get lymphoma! ) primarily corticosteroids are used and as we all know, tics and steroids are a bad mix, never mind all the other side effects too. As with TS, stress causes major flare ups as does poor diet, which thankfully we dont have anyway, my research took me into an excellent plan which we have him on and it is keeping the inflammation and the pain at bay! the biggest challenge now is the anaemia, frequently associated with Crohn's........even the Gentle Iron seems to much for him to tolerate so we give one every other day instead of twice daily and are trying to just boost his diet with iron rich foods. We are using Boswellin/curcumin(turmeric) as an anti-inflammatory with Slippery Elm, L-glutamine and DGL liquorice as healing agents for the ulceration. That along with a bunch of other supps that promote healing and reduce inflammation. Of course, with Crohn's being an auto-immune disease, he cant take immune boosting supps anymore. We are also following the excellent dietary guidelines in The Maker's Diet by Jordan Rubin, and our acupuncture therapist has added FSM to the biofeedback program he uses with Aaron, which is remarkable ( http://www.frequencyspecific.com/ ) We also see a chiro who, in addition to the NUCCA therapy, does very special manipulation to calm and heal the smooth muscle of his digestive system So far, the docs are very pleased with the results, and his blood tests show the inflammation is way down As there is no "cure" for Crohn's, remission is the aim as i mentioned on that other thread, the vaccines he had for middle school and international travel may well have contributed to this as it all started not long after that, tho we were led thru a drawn out maze of parasites, mono, appendicits, and peptic ulcers before the definitive dx I have also been told by the specialist who did the colonoscopy that the adverse effects my son suffered during that year on meds for the TS/OCD may well have played a role in precipitating this too oh well, forgive my rambling but again I say all this to reinforce my postition that the side effects from meds and vaccines can have far reaching and longterm impact on health in ways we may not even be aware of! Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now