Post IVIG side effects

[Hayley]

DD7 had HD IVIG thursday and friday at Dr. L's office. treatment days could not have gone better. She was a real trooper at the dr.'s and came home happy and playful, no complaints both days. Saturday (day following the treatments) she wanted to lay low at home and had some headaches on and off, but they were manageable with motrin and tylenol. She also had a very low grade fever (just over 99). She was up in the middle of the night and vomitted this morning around 5 and again at 6:30. I gave her zofran and she bounced back pretty quickly and is now doing great. I'm assuming the vomitting is still within normal range so I don't want to bother dr. L over the weekend. Wondering how long we should expect to be up and down like this though. I think it varies greatly from kid to kid, but would love to hear others' expereinces.

 

Also, did anyone find their kids sleep patterns were thrown off after IVIG? Both thursay and friday night, she had a hard time settling in for bed and got to sleep late (not normal for her), and she's been getting up super early. I'm thinking she's just not feeling quite right, but also really want her to get some sleep as I'm sure her body needs it! Not really wanting to introduce other supplements for this with everything else going on in her system, but sure hope she gets back on track soon!

Edited December 9, 2012 by Hayley

[philamom]

All normal. Expect physical side effects 3-4 days afterwards. My dd's sleeping patterns are thrown off as well. She stays up way later (not tired). It last week or two, then back to her normal (abnormal) sleep patterns. Good Luck!

[beeskneesmommy]

I think every kid responds differently. Mine slept prett well afterward. We had IVig w/Latimer in mid-September. I recall that she had us administer Zofran, Tylenol,Advil round the clock for several days afterward as a preventative measure. The Zofran, especially. We stopped it 3 days post the end of the IVig. No vomiting, 1 day (the after the IVig was over) some bad headaches, but no other severe side effects. She said that the side effects could persist for up to a week afterward. I would continue the Zofran round the clock for another day or 2 since she vomited.

[nicklemama]

It will last a couple of days.

[norcalmom]

DSs lated a long time and required steroids, and even after steroids - would become nauseas if I missed a does of Advil in the middle of the night (day 10 I thought it might be safe to finally not wake him up - and he had not worke me up yet...) - so keep up the Advil every 4-6hours for several days if they have migraines or nausea. lots of water of course.

[JenniferG]

DSs lated a long time and required steroids, and even after steroids - would become nauseas if I missed a does of Advil in the middle of the night (day 10 I thought it might be safe to finally not wake him up - and he had not worke me up yet...) - so keep up the Advil every 4-6hours for several days if they have migraines or nausea. lots of water of course.

I'm so happy to read this. My dd had IVIG 12 days ago and has had a screwy sleep pattern since, usually asleep between 8-8:30. Now it's 10-10:30. Saying she isn't tired.