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Posted

I am wondering if anyone had experiences with Dr. Neubrander (the one, as I understand, who was the first to use methyl-B12 for Autisim)? Hi web-site lists PANADAs as one of the conditions he treats.

http://www.drneubrander.com/PANDAS.php

 

We are patients of Scott Smith PA...out of same office.

Scott is great, highly versed, always learning, helps you understand, and wonderful bedside manner.

We have not used Dr N.

Posted

fixit, can you comment on the videos on the site by any chance? they present a miracle-like recovery of speech, and what seems like a cessation of autism. can you confirm those effects from your experience?

thanks.

Posted

fixit, can you comment on the videos on the site by any chance? they present a miracle-like recovery of speech, and what seems like a cessation of autism. can you confirm those effects from your experience?

thanks.

 

Well, i think that there are kids that can find recovery if you can find the what that particular child is missing or the areas of the immune system for which the child needs support.

 

My boys are all pandas(ticcers) with other slight issues like sensory, disgraphia, add/adhd, etc. So we use scott for help in these areas. Through blood urine testing and other, they can hoan in on some things that are out of balance, and sometimes just through your discription of events.

 

I might be calling scott soon to see if he can guide me further in what i am doing for the gut, etc. Waiting for an ALCAT test to come back as ds now seems to allergic/sensitive to anything that cross reacts with his extreme enviromental allergies. But all these thing cost $$$$$$ and i try to space and logically thing of next step or dr who would have the next peice of puzzle.

Scott is a great listener and will not dismiss thoughts or research you have come across. He is always learning.

 

It would be nice if One dr had all the answers. You may hit on just that thing for your child. I have seen it even with the brain balance program for some kids. I may go back that way again as i move along.

 

I would like the kids to go through a pans/pandas/pitand/lyme car wash. WHere the child and parent sit in the center. The urine/stool/blood are drawn in advance. THe patient is then viewed by 6=8 specialists AT THE SAME TIME(nuero, immuno, nutrition, dan,endocro, etc). So when one question is asked, they ALL get to hear the answer. THen that might trigger a question for the other dr and they ALL get to hear the answer. So it is more of a brain storming for each child BECAUSE THEY ARE ALL SO DIFFERENT and a 3 month protocal is set in place with a car wash set up at that time.

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