Post-IVIG- isolate/avoid people and how long?

[thenmama]

Ds finally had his IVIG treatment on Friday and Saturday. He is feeling pretty good now. He had some side effects Saturday night, but they passed quickly with our post-treatment meds plan (thanks to all who helped me with that!). Now we're just in watch and wait mode.

 

But... I can't remember how we handled the post-IVIG period with our dd, and even if I did, our circumstances were very different then-- it was summer break and her activities out of the home were already minimal to none. Wondering if anyone can share what their docs say about this, or any other advice or experiences?

 

For context:

Ds is homeschooled. I don't need or plan to bring him out for things like errands, shopping, etc. The only activity I am wondering about is his homeschool coop, which meets once a week. It's a small group of families, all friends who'll give me a heads up about any recent illnesses or sick family members. But that doesn't guarantee they haven't been exposed to something while going about their lives. He's had to miss a few sessions already this fall because of a viral illness and PANDAS, and he was very upset about that and desperately wants to attend. Obviously if the treatment causes an uptick in symptoms or he's not feeling well or doesn't seem like he can handle it we wouldn't go anyway. But in the absence of those issues-- any info or advice on how long to keep him out of commission?

 

So tricky to balance their (sometimes conflicting) needs!

 

Thanks all:)

[philamom]

Glad he is past the side effects. In my opinion I would at least skip the first meeting. Again, my personal experience.

fwiw- my daughter vomited on the third day post infusion (with severe headache) last time around. So still keep up with post treatment.

[thenmama]

Thanks for the suggestions on both fronts. My intention was to spend this week at home, anyway, because he is still recovering from the treatment itself on top of all the other stuff that may or may not be an issue. But I wasn't sure if there's a recommended timeframe beyond that for isolation/public-social avoidance following treatment. I think it'd help him if I can give him a sense of when he can return to class, since he gets upset every time he has to miss. But, I also forgot that we're off for Thanksgiving next week, which already buys us more time/protection.

 

I'm glad you shared about the delayed side effects, too. My dd had severe migraine and vomiting after hers (and unfortunately we didn't have the med plan in place--from what I've heard, her PANDAS doc now seems to order the side effect meds with the treatment but either didn't then or it was overlooked for dd). Once she was through it, though, it didn't return. It's helpful to know this isn't always the case so I can be on the lookout and keep up with the preventives...

 

Much appreciated!!