Sean Posted October 26, 2012 Report Posted October 26, 2012 Our son has started the classic symptoms of PANDAS. We have made an appointment, but I have concerns and doubts our doctor will agree with or even knows about PANDAS. We live in Appleton, Wi. Can anyone recommend a specialist that is open to PANDAS? Thanks!
Chemar Posted October 26, 2012 Report Posted October 26, 2012 Hi and welcome you had posted this on the Tourette forum so I have moved it here to the PANDAS forum for you
PowPow Posted October 26, 2012 Report Posted October 26, 2012 (edited) I do not have a PANDAS doc for you, but I wanted to STRONGLY suggest you consider keeping the expertise of Rogers Memorial hospital in Oconowomoc, WI in mind. They are experts in CBT and OCD and even hosted several PANDAS docs this fall for a meeting. In my experience (2 severely affected PANDAS children) both PANDAS medical treatments & traditional therapy have brought them to healing! Rogers may have an outpatient therapy treatment program as well, maybe at a campus closer to you. We came from all the way across the country for their care and would do it again in a heartbeat! Edited October 26, 2012 by PowPow
Sean Posted October 29, 2012 Author Report Posted October 29, 2012 I do not have a PANDAS doc for you, but I wanted to STRONGLY suggest you consider keeping the expertise of Rogers Memorial hospital in Oconowomoc, WI in mind. They are experts in CBT and OCD and even hosted several PANDAS docs this fall for a meeting. In my experience (2 severely affected PANDAS children) both PANDAS medical treatments & traditional therapy have brought them to healing! Rogers may have an outpatient therapy treatment program as well, maybe at a campus closer to you. We came from all the way across the country for their care and would do it again in a heartbeat! Thanks so much for your reply. I will look into Rogers Memorial.
Pandasphilly Posted October 31, 2012 Report Posted October 31, 2012 I do not have a PANDAS doc for you, but I wanted to STRONGLY suggest you consider keeping the expertise of Rogers Memorial hospital in Oconowomoc, WI in mind. They are experts in CBT and OCD and even hosted several PANDAS docs this fall for a meeting. In my experience (2 severely affected PANDAS children) both PANDAS medical treatments & traditional therapy have brought them to healing! Rogers may have an outpatient therapy treatment program as well, maybe at a campus closer to you. We came from all the way across the country for their care and would do it again in a heartbeat!
Pandasphilly Posted October 31, 2012 Report Posted October 31, 2012 I do not have a PANDAS doc for you, but I wanted to STRONGLY suggest you consider keeping the expertise of Rogers Memorial hospital in Oconowomoc, WI in mind. They are experts in CBT and OCD and even hosted several PANDAS docs this fall for a meeting. In my experience (2 severely affected PANDAS children) both PANDAS medical treatments & traditional therapy have brought them to healing! Rogers may have an outpatient therapy treatment program as well, maybe at a campus closer to you. We came from all the way across the country for their care and would do it again in a heartbeat!
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