mythree Posted October 19, 2012 Report Share Posted October 19, 2012 I have always been interested in CBIT but wanted to wait for my daughter to be old enough to give it a good try. She is 12 now. I discovered a Tourettes clinic in Toronto and we were referred there. She was diagnosed with Tourettes "officially" even though we have known that for sometime. But the offical label had her qualify for CBIT. We had our first session yesterday - just an introduction - but it sounded very promising. I guess after 7 years of doctors saying 'she has tics' and then sending us on our way (except for our integrative doctor) it was nice to have doctors actually have an action plan for us that didn't involve medication. Anyone tried this themselves or with their kids before. This program mirrors the same approach I would say as Dr Duncan Mckinley's book "Nix your tics". Thanks, Lisa Link to comment Share on other sites More sharing options...
chez Posted October 19, 2012 Report Share Posted October 19, 2012 Sorry I can't reply with any experience regarding CBIT, but I'm very interested in it, and would love to hear how you go with your daughter. My daughter is about to turn 10, so it may be a little early for her, but I think she would be capable soon. Good luck. Link to comment Share on other sites More sharing options...
mythree Posted October 19, 2012 Author Report Share Posted October 19, 2012 Sorry I can't reply with any experience regarding CBIT, but I'm very interested in it, and would love to hear how you go with your daughter. My daughter is about to turn 10, so it may be a little early for her, but I think she would be capable soon. Good luck. Thanks, I'll keep you posted! She goes every week for about 12 weeks and then every other week etc. So hopefully we'll know something soon. Link to comment Share on other sites More sharing options...
Emik Posted January 21, 2013 Report Share Posted January 21, 2013 Sorry I can't reply with any experience regarding CBIT, but I'm very interested in it, and would love to hear how you go with your daughter. My daughter is about to turn 10, so it may be a little early for her, but I think she would be capable soon. Good luck. Thanks, I'll keep you posted! She goes every week for about 12 weeks and then every other week etc. So hopefully we'll know something soon. Hi Lisa, I was doing some research on CBIT and came across your post. I would really appreciate your feedback on this technique. My dd is 11 and she is suffering from tics since the age of 9. I just purchased the book "Nix the tics" (haven't received it yet), but would be hesitant to try anything on my own without professional guidance, so I was looking into CBIT as a possible option to inquire. Regards, Amy Link to comment Share on other sites More sharing options...
mythree Posted January 23, 2013 Author Report Share Posted January 23, 2013 Hi Amy, We are having great success with the CBIT so far. We are happy and surprised by the results and most importantly my daughter is very happy with the changes she has seen too. I too read the book Nix your tics first, but like you - I wanted to go at it with professional help guiding us along the way. She goes once a week to the Tourettes and tics clinic at a hospital. She only gets to work on one tic at a time - and she learns a competing response to it - that replaces the big tic movement - with a small unnoticable and unpainful movement. It is really interesting - for we have spent years telling her to ignore the tics and not talking about them to some degree - but this actually gets her to focus on the tic that is giving her the most problems -whether it be a painful or embarrassing etc. But along with the CBIT is a lot of councelling on anxiety, worries, which I think has really helped her a lot too. I wouldn't have thought of her as an anxious child - but it seems more underlying for her. It is a slow process - going for one tic at a time, but I have noticed other tics she has have decreased as well. I think it is the first time in 7 years that we don't feel so anxoius about it for we feel like she has a game plan. We still use magnesium, multi vitamin and a pretty clean diet - but we've been doing that for years now. Are you in Canada or the US? Hi Lisa, I was doing some research on CBIT and came across your post. I would really appreciate your feedback on this technique. My dd is 11 and she is suffering from tics since the age of 9. I just purchased the book "Nix the tics" (haven't received it yet), but would be hesitant to try anything on my own without professional guidance, so I was looking into CBIT as a possible option to inquire. Regards, Amy Link to comment Share on other sites More sharing options...
Emik Posted January 24, 2013 Report Share Posted January 24, 2013 (edited) Hi Lisa, Thank you so much for your response. I am so happy to hear that CBIT is helping your daughter. We live in Montreal, Canada. I called Montreal's TS Clinic to inquire on CBIT, but according to my brief telephone conversation I didn't get a feeling that CBIT is being offered. They mentioned medications, relaxation techniques and "Habit Reversal". I am anxious to inquire more on my next appointment with my daughter's Pediatrician, March 11. Warmest Regards, Amy Hi Amy, We are having great success with the CBIT so far. We are happy and surprised by the results and most importantly my daughter is very happy with the changes she has seen too. I too read the book Nix your tics first, but like you - I wanted to go at it with professional help guiding us along the way. She goes once a week to the Tourettes and tics clinic at a hospital. She only gets to work on one tic at a time - and she learns a competing response to it - that replaces the big tic movement - with a small unnoticable and unpainful movement. It is really interesting - for we have spent years telling her to ignore the tics and not talking about them to some degree - but this actually gets her to focus on the tic that is giving her the most problems -whether it be a painful or embarrassing etc. But along with the CBIT is a lot of councelling on anxiety, worries, which I think has really helped her a lot too. I wouldn't have thought of her as an anxious child - but it seems more underlying for her. It is a slow process - going for one tic at a time, but I have noticed other tics she has have decreased as well. I think it is the first time in 7 years that we don't feel so anxoius about it for we feel like she has a game plan. We still use magnesium, multi vitamin and a pretty clean diet - but we've been doing that for years now. Are you in Canada or the US? Hi Lisa, I was doing some research on CBIT and came across your post. I would really appreciate your feedback on this technique. My dd is 11 and she is suffering from tics since the age of 9. I just purchased the book "Nix the tics" (haven't received it yet), but would be hesitant to try anything on my own without professional guidance, so I was looking into CBIT as a possible option to inquire. Regards, Amy Edited January 24, 2013 by Emik Link to comment Share on other sites More sharing options...
mythree Posted January 25, 2013 Author Report Share Posted January 25, 2013 Hi Amy, From what I understand there are 3 major clinics that have been trained in it (in ontario) London, Ontario , Toronto and probably closest to you Ottawa. My pediatrician didnt even know of this clinic. It was recommended to me from another tics specialist / and a teacher who has tourette. I think in nix your tics book he has listed clinics in Canada who practice it. Good luck! Link to comment Share on other sites More sharing options...
wagenhammer Posted June 16, 2014 Report Share Posted June 16, 2014 Hi there, is this the UHN Clinic at Toronto Western Hospital? I am wondering for the treatment ended up going? My partner is 26 and on the list to be there soon--how are the doctors? anyone else have an positive results? Hi Amy,We are having great success with the CBIT so far. We are happy and surprised by the results and most importantly my daughter is very happy with the changes she has seen too. I too read the book Nix your tics first, but like you - I wanted to go at it with professional help guiding us along the way. She goes once a week to the Tourettes and tics clinic at a hospital. She only gets to work on one tic at a time - and she learns a competing response to it - that replaces the big tic movement - with a small unnoticable and unpainful movement. It is really interesting - for we have spent years telling her to ignore the tics and not talking about them to some degree - but this actually gets her to focus on the tic that is giving her the most problems -whether it be a painful or embarrassing etc. But along with the CBIT is a lot of councelling on anxiety, worries, which I think has really helped her a lot too. I wouldn't have thought of her as an anxious child - but it seems more underlying for her. It is a slow process - going for one tic at a time, but I have noticed other tics she has have decreased as well. I think it is the first time in 7 years that we don't feel so anxoius about it for we feel like she has a game plan.We still use magnesium, multi vitamin and a pretty clean diet - but we've been doing that for years now.Are you in Canada or the US? Hi Lisa,I was doing some research on CBIT and came across your post. I would really appreciate your feedback on this technique. My dd is 11 and she is suffering from tics since the age of 9. I just purchased the book "Nix the tics" (haven't received it yet), but would be hesitant to try anything on my own without professional guidance, so I was looking into CBIT as a possible option to inquire.Regards,Amy Link to comment Share on other sites More sharing options...
mythree Posted June 19, 2014 Author Report Share Posted June 19, 2014 Hello Wagenhammer, Yes we are going to the Toronto Western Hospital in the Tourettes and Neurodevelopment clinic. We could not be happier with the success we have had at the clinic. Takes work and commitment on the part of the person with Tourette's but we have seen such amazing results. Good luck and hope your partner gets in soon! Hi there, is this the UHN Clinic at Toronto Western Hospital? I am wondering for the treatment ended up going? My partner is 26 and on the list to be there soon--how are the doctors? anyone else have an positive results? Hi Amy,We are having great success with the CBIT so far. We are happy and surprised by the results and most importantly my daughter is very happy with the changes she has seen too. I too read the book Nix your tics first, but like you - I wanted to go at it with professional help guiding us along the way. She goes once a week to the Tourettes and tics clinic at a hospital. She only gets to work on one tic at a time - and she learns a competing response to it - that replaces the big tic movement - with a small unnoticable and unpainful movement. It is really interesting - for we have spent years telling her to ignore the tics and not talking about them to some degree - but this actually gets her to focus on the tic that is giving her the most problems -whether it be a painful or embarrassing etc. But along with the CBIT is a lot of councelling on anxiety, worries, which I think has really helped her a lot too. I wouldn't have thought of her as an anxious child - but it seems more underlying for her. It is a slow process - going for one tic at a time, but I have noticed other tics she has have decreased as well. I think it is the first time in 7 years that we don't feel so anxoius about it for we feel like she has a game plan.We still use magnesium, multi vitamin and a pretty clean diet - but we've been doing that for years now.Are you in Canada or the US? Hi Lisa,I was doing some research on CBIT and came across your post. I would really appreciate your feedback on this technique. My dd is 11 and she is suffering from tics since the age of 9. I just purchased the book "Nix the tics" (haven't received it yet), but would be hesitant to try anything on my own without professional guidance, so I was looking into CBIT as a possible option to inquire.Regards,Amy Link to comment Share on other sites More sharing options...
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