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mythree

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Everything posted by mythree

  1. Hello, I have heard very good things about a clinic in Burlington, Ontario outside of Toronto. It is http://naturalcareclinic.ca/ They specialise in ADHD, autism, Tourettes etc.
  2. Hello Wagenhammer, Yes we are going to the Toronto Western Hospital in the Tourettes and Neurodevelopment clinic. We could not be happier with the success we have had at the clinic. Takes work and commitment on the part of the person with Tourette's but we have seen such amazing results. Good luck and hope your partner gets in soon!
  3. That is great news Alan! Thanks for sharing! So great to hear of a treatment with positive results. Often once a person finds some success in their treatment I think they end up not posting anymore, so we don't always get to hear of the 'success stories' and that is why statistically it could look like a treatment hasn't worked for a lot of people. This is great to have another avenue to explore. Hope everything continues positively! Lisa
  4. L-Carnatine helped a lot for my daughter's vocal tic. She was 10 and about 60 pounds and took 250mg.
  5. I don't like the term habit either and it was never used for us when following CBIT at the clinic we went to. Dr Dunc speaks of habit reversal training and CBIT. We didn't do the 'habit reversal training' rather the "and the Comprehensive Behavioral Intervention for Tics (CBIT) program. I am sorry if I mislead in some way. I was just saying what CBIT was for us and its benefits for our daughter.
  6. Hello, My daughter just completed CBIT (she still goes for follow up appointments) with amazing success. We have tried everything since she was 5 and she started CBIT at 12 (she's 13 now) and the results have been life changing. CBIT - doesn't use the word habit reversal - at least with the doctors we dealt with - in fact they won't use the word habit - for that is so far from what Tourettes or tics are. CBIT is a program specifically for Tics (that is why it is called Comprehensive Behavioral Intervention for Tics) it is focused just on tics. Not reversal of tics but rather the awareness
  7. My daughter is 13 and a competitive dancer and she did the same thing. Would do spins and turns everywhere we were. It wasn't so bad when she was little, but when she was 12 and would break out into a turn sequence while walking down the hallway at school or in the line up for a movie - it wasn't so great. She used CBIT - just like she did with her smaller tics. She no longer does this, but rather if she has the urge will do a small hand motion that is not noticeable. Good luck!
  8. My daughter also had debilitating tics. She missed lots school due to the nature of some of her motor tics. Her vocals weren't as bad but still there. After doing CBIT for 8 months, we see very few if any tics. I had at first thought it was a wax and wan type thing and waiting for the flare up but she is still going strong. She seems so confident in the controlling of them - that I am starting to relax a little. I am hoping I can soon just sit back and relax soon and think of major tics being a thing of the past for her. But to answer your question. I do believe that she has successfully f
  9. Hello, My 12 year old daughter has just completed CBIT (behavioural intervention therapy for tics) - pretty much same jist as HRT. She has had amazing success at it. She has tourettes, adhd (inattentive type) and anxiety. She has had tics since 5 years old. We have tried, diet, vitamins, naturopaths, osteopaths, homeopaths, integrative doctors, metal detox, and a year of antibiotics for PANDAS treatment. All with various levels of success. However, she was accepted into the CBIT program in October and has gone every week to the hospital clinic that specialises in it. She also has to work
  10. Hi Amy, From what I understand there are 3 major clinics that have been trained in it (in ontario) London, Ontario , Toronto and probably closest to you Ottawa. My pediatrician didnt even know of this clinic. It was recommended to me from another tics specialist / and a teacher who has tourette. I think in nix your tics book he has listed clinics in Canada who practice it. Good luck!
  11. Hi Amy, We are having great success with the CBIT so far. We are happy and surprised by the results and most importantly my daughter is very happy with the changes she has seen too. I too read the book Nix your tics first, but like you - I wanted to go at it with professional help guiding us along the way. She goes once a week to the Tourettes and tics clinic at a hospital. She only gets to work on one tic at a time - and she learns a competing response to it - that replaces the big tic movement - with a small unnoticable and unpainful movement. It is really interesting - for we have s
  12. I have two Daughters with tics. One who is 12 and diagnosed with Tourette's and one who is 7 and has started with tics as well.
  13. Yes, one of my daughters does something like this - but her specialist said it was an OCD behaviour. She also has tics.
  14. Thanks, I'll keep you posted! She goes every week for about 12 weeks and then every other week etc. So hopefully we'll know something soon.
  15. I have always been interested in CBIT but wanted to wait for my daughter to be old enough to give it a good try. She is 12 now. I discovered a Tourettes clinic in Toronto and we were referred there. She was diagnosed with Tourettes "officially" even though we have known that for sometime. But the offical label had her qualify for CBIT. We had our first session yesterday - just an introduction - but it sounded very promising. I guess after 7 years of doctors saying 'she has tics' and then sending us on our way (except for our integrative doctor) it was nice to have doctors actually have an a
  16. Thanks everyone for your feedback. She only took one dose in the a.m. and then she has the rash around 9pm. She is allergic to cephzil and she also got a rash from penicillan (this was years ago for ear infections or something like that). She is by far a rashy kid. I am anxious it is the zythromyacin - for I was so excited to get her started on this and hopefully she could start to heal. I guess I am worried that if it is an allergic reaction and if it gets bad and I have to take her to the hospital - well her pediatrician is not aware we are seeing another doctor for her tic/ocd etc.
  17. Hello everyone, I'd like to introduce myself. I have an 11 year old DD and we are in Ontario, Canada. We have been over at the tics and tourettes board for quite awhile. We have been seeing an integrative Dr for my daughters Tics, inattentive ADHD and occasional OCD. We have done well minimizing them with supplements/vitamins and diet. However the tics are persistent. She is always getting strep infections - all my kids are - and many over at the Tic/Tourettes board have suggested PANDAS to me. At our last appointment with her DR who deals with all this (not her pediatrician) he noti
  18. Hello, I have been posting on the tics and tourettes board for some time now. We had great success with supplements, diet etc but still constantly have these flare ups of tics and mild ocd type behaviour. As I have posted in the past, my daughter has reoccurrent strep infections. I have always wondered if there was a connection. Our pediatrician does not believe in alternative approaches at all. We see an integrative doctor as well who has been wonderful. Anyway - I went for our 3 month check up today. I was so anxious to see him for my daughter is in a major tic flare up. A debilit
  19. My DD's tics are off the chart right now. She was doing well for quite awhile. She is 11 and is currently doing a sniffing tic, an arm snapping tic, a neck roll, a nose and eye tic and one where she keeps hitting herself in the face. she is also doing a tic where she is constantly waving the air infront of her face. Also if she knocks her elbow on something she mmediately has to knock it again and then do the pattern again over and over a few times. she is still on all her supplements. We added in methyl B12 and folapro about 4 weeks ago - to help her with her inattentive ADHD. I removed he
  20. Alan, Can you take this medication only as needed? So only if there is a big flare up and it is causing distress you could take it then? Does it make them tired? Please let me know how it goes for your son. Al the best,
  21. Hi Al, My daughter is 11. We have been following our own regime that was given to us by an MD that also specialises in autisim, adhd - but with natural approaches. She has been doing great on the supplements. Tic wise at least. But her adhd improvement has hit a standstill. I understand your frustration. It is so exhausting and it feels like we live on a rollercoaster - analysing everything she eats or doesn't. No, I haven't done Bonnies' vitamins - but rather followed those from the specialist doctor. We added methyl B12 and Folic acid into the mix as well (for her adhd) so perhaps th
  22. Hello, I was about to post the same thing - but then I saw your post. My daughter's tics which have been really good for quite awhile have exploded as well. She waves her hand in front of her face over and over and over like she it batting at a fly. She can't get her work done for she has to keep doing it! It is so frustrating for her. She also came home today complaining of a headache and her throat feeling weird. I immediately thought strep and was almost relieved at the thought that there was a source for her tics - but the rapid strep came up negative. The doc gave me a prescription f
  23. From what I understand they can't really measure vitamin E. But if you are deficient in Vitamin D than there is a good chance of being deficient in Vit E. I will look for my old notes from the doctor. Regardless, I have met other people who have used Vitamin E for large motor. My daughter no longer takes the E, for she doesn't do the big movement tics anymore. I've never heard this before. Are they related somehow?
  24. My daughter who is 11 now was put on 7000 IU of Vitamin D by her doctor for tics. She was put on this when she had just turned 10. He vitamin D levels were sooo low. Usually if you have low vitamin D levels - you also have low vitamin E levels. There is talk that they are using vitamin E for large muscle movements such as those associated with MS. The vitamin D which was part of an entire regime of vitamins/minerals really helped with my daughters large motor tics. She now takes 1000 IU's a day.
  25. When my DD was little like yours we just told her we were looking into 'allergies'. That maybe she was allergic to something. She had so many friends with allergies that had to say 'no' to cake, or couldn't eat gluten etc etc for various reasons that when we gave her a reason for her tics (even though we didn't really know if it was caused by allergies) she seemed much calmer. She used to have itchy skin at the time too - so we would often say we are eliminating this food for your itchy skin or something like that - so it wasn't always about the tics. We just acted like they weren't a big de
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