dsnow777 Posted October 17, 2012 Author Report Share Posted October 17, 2012 Where do you find a doctor willing to diagnose PANDAS and prescribe antibiotics with no active or lab "positive" evidence of an infection? Our current doc basically said if this blood test shows no strep then we can rule out pandas and his only other solution is to wait it out and see a psychiatrist Link to comment Share on other sites More sharing options...
colleendonny Posted October 17, 2012 Report Share Posted October 17, 2012 You need to see a PANDAS specialist. They will help. Link to comment Share on other sites More sharing options...
EAMom Posted October 17, 2012 Report Share Posted October 17, 2012 Hi, You might be interested in this (the doc being interviewed tonight is in the LA area) **NEW TIME** 9PM (ET)/8PM (CT)/6PM (PT) Dr. Chitra Bhakta, M.D. is our special guest this coming Wednesday, Oct. 17th. Dr. Bhakta works in the Los Angeles area and has more than 25 years experience treating patients with PANDAS, CFIDS, Lyme Disease, Fibromyalgia, Methylation Dysfunction and auto-immune disorders using an integrative medical approach. Dr. Bhakta is currently working with the UC Irvine Micro Biology Department ( Molecular Mimicry) researching PANDAS and other auto-immune disorders and the genetic, environmental, and pathogenic impact on these chronic conditions. Dr. Bhakta appeared on a special Lyme Disease segment of the Dr. Phil show in April of this year. Here's the link: http://www.blogtalkradio.com/radiopandas/2012/10/18/triggers-treatments-and-triumph If you can't listen live, the show will be archived. PS yes, my dd had low strep titers despite positive cultures and PANDAS severe enough to require hospitaliation. Link to comment Share on other sites More sharing options...
bulldog24 Posted October 18, 2012 Report Share Posted October 18, 2012 My son has classic PANDAS . No elevated strep bloodwork. NIH told me 1/3 of PANDAS KIDS do not have elevated aso antidnase b. So keep pushing forward and trust your gut. get to a PANDAS DOC asap Link to comment Share on other sites More sharing options...
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