MamaOnAMission Posted October 11, 2012 Report Share Posted October 11, 2012 My child is on lamictal and it does not help to calm brain down really. Is topomax similiar to lamicat in the way it works. If it is, I probably won't try it. Instead I may up her seroquel instead. Any advice is helpful. Thanks Link to comment Share on other sites More sharing options...
danddd Posted October 16, 2012 Report Share Posted October 16, 2012 a few years ago, before lyme diagnosis, and before abx. and ivig for pandas, dd was on various psych meds. lamictal and seroquel for about 6 months. Every month it was increased very slowly, but we saw no improvement. after her first ivig she improved enough to start taking her off them. good luck Link to comment Share on other sites More sharing options...
momcap Posted October 16, 2012 Report Share Posted October 16, 2012 Before DS's PANDAS and subsequent lyme diagnosis we tried seroquel with no improvement at all. But you never know, everyone's situation is very different. Link to comment Share on other sites More sharing options...
MamaOnAMission Posted October 16, 2012 Author Report Share Posted October 16, 2012 I wonder why a lot of LLMD docs say that Bart. Kids need lots of psychiatric drugs but I keep hearing how they don't work for many people???? Link to comment Share on other sites More sharing options...
rowingmom Posted October 17, 2012 Report Share Posted October 17, 2012 I'm not sure a lot of LLMDs think kids with bart need to be on psychiatric drugs, but I am sure a lot of main-streams doctors do. Our family doctor and pediatric psychologist both wanted DD11 on them before we found a LLMD and started treating the cause and not just the symptoms. Link to comment Share on other sites More sharing options...
MamaOnAMission Posted October 17, 2012 Author Report Share Posted October 17, 2012 I thought I read somewhere that at the LLMD conference...doctors said there are a lot of psych. symptoms w/bart. and psych drugs are often needed. Probably read wrong. Link to comment Share on other sites More sharing options...
laure Posted October 18, 2012 Report Share Posted October 18, 2012 We have seen a psychiatrist with a specific interest in lyme, working with a lyme doctor, and 2 psychologists. All have said that, regardless of the cause (infection, whatever) you need to treat the OCD and not wait for it to go away on it's own with lyme treatment. I'm not sure I am in agreement, just reporting. The psychiatrist put our daughter on zoloft, slowly increasing to 150 mg. (she is 11, 105 pounds) and all it did is make her a little less sad. Now she also is suggesting seroquel, which is supposed to "help the zoloft do what is should do". Meaning decrease anxiety and OCD. Not sure I am buying this either, but that opinion is out there, for what it is worth. In the end, for us it is about getting through the night/week/month... Sammy Maloney was on some anti-psychotics, so there is one successful story anyway. CBT and ERP has been a bust, but we didn't get far at all - psychologist cut her from her patient list since my dd would not cooperate. Link to comment Share on other sites More sharing options...
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