bulldog24 Posted October 10, 2012 Report Share Posted October 10, 2012 Hi everyone.Hopefully you have heard by now that there is a protest being held for the next 3 days at BCH! There is a child in the hospital that has PANDAS/PANS/LYME and custody has been taken away from her parents for no good reason. We are protesting for her and ALL PANDAS/PANS/Lyme kids that have been mistreated and not treated and we hope this will start to change things in this area! please like this page https://www.facebook...eeelizabethwray and read more. We think this is a day of change and could help all of our kids! I personally brought my son here and was told "absolutely not PANDAS" and "stay off the internet" and he was diagnosed at the NIH 3 months later. So this could have been us just as easily as this family. Please share tweet contact everyone you know about whats going on here. Today is the day to push this out there. All are welcome to attend the protest and details are on the page I gave. Thanks so much! Link to comment Share on other sites More sharing options...
minimaxwell Posted October 11, 2012 Report Share Posted October 11, 2012 I'll be there!!! Link to comment Share on other sites More sharing options...
lulu4 Posted October 12, 2012 Report Share Posted October 12, 2012 Wish I could be there, but too far away. Thank you for being there and representing PANDAS/PANS families! Link to comment Share on other sites More sharing options...
philamom Posted October 12, 2012 Report Share Posted October 12, 2012 ditto Link to comment Share on other sites More sharing options...
EmilyK Posted October 12, 2012 Report Share Posted October 12, 2012 I'll be there. Link to comment Share on other sites More sharing options...
Hopeny Posted October 13, 2012 Report Share Posted October 13, 2012 Thank you guys for going. I wish I could, I'm posting frequently to BCH wall. Reading all the posts is truly remarkable, there are so many of us Link to comment Share on other sites More sharing options...
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