Is it true that nothing short of IVIg ever helps adults?

[Ozimum]

Yay Wombat! So good you've found a dr who is taking this seriously! Whoohoo! I'm doing a happy dance for you! Hope it goes smoothly from here. Keep us updated.

[kos_mom]

Wombat140,

 

Congratulations on finally finding a doctor who gets it. I hope all your bloodwork gets underway soon so you can get on with the treatment as soon as possible.

 

Until your recent posts, I did not realize you are as young as you are. You are, in fact, the same age as my DS. He had Pandas for many years as a child and dx'ed by the NIMH. His syptoms went away around age 14 and we put all the chaos behind as a distant memory. But strep came back and struck him twice while in college. For the first time in June he saw a proper Pandas expert. She put him on strong abx that he daid helped, had him have his tonsils out, which helped even more, but he is still not 100% and is being scheduled for IVIG. He is not in college this year owing to the Pandas, but we are hopeful we will be able to return in January.

 

I also have a daughter, 19, who was just diagnosed last month. She has gotten much better in some ways with abx, but her Pandas doctor believes she still remains very sick and needs IVIG as soon as possible.

 

Although most on this board are dealing with much younger children, you definitely are not alone in seeeking help for this as a post-adolescent. We are hopeful we can overcome the destruction in our children's health this illness has brought and you now have good reason to be hopeful too not that you have found proper medical care.

 

Ko's Mom