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Posted

My DS14 is currently on IV therapy for Lyme - he takes a pulsing protocol of Rocephin, Flagyl, VFend. He has had 3 nose bleeds in the last 24 hours - very rare for him. Should I be worried?

 

He also has PANDAS, Babesia and Bartonella and takes oral meds and lots of supplements.

 

Thanks in advance.

Posted

I have had a history of nose bleeds my whole life, but interestingly, the only time I did not have any was the 18 months I was on abx for Lyme/Bartonella. Even during the winter, which is highly unusual for me. Then, they started up again ~ two months after stopping abx treatment. I have also experienced some foot pain and a couple other minor symptoms. So I'm thinking my nose bleeds may be linked to Bartonella. I'm about to do an A-Bart challenge so it will be interesting to see if the nose bleeds get worse before getting better again. The one thing that has helped is vitamin K drops.

Posted

What I've been hearing lately nosebleeds as a child seems to be a lyme symptom. I had them as well, my brother and sister did not, and guess who ends up dx with lyme as an adult, with symptoms traced back to childhood? Three in a day is kind a lot ... are they long and gushy and scary, or just concerned 'cause it's 3? I'd look at it as increase in symptoms that have a good chance of passing over time. Is anything just recently changed with treatment to explain it? If not, I guess you need to be on the lookout for another cause. Only exception is, like any exacerbation, if it's dangerous (too many, too long, too much blood, etc.), then backing off would make sense. In the meantime, I'm gunna suggest more protein as a possibility to consider, and also consider getting off any blood-thinning things (such as fish oils).

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