Clean Up Gut First

[hugs2day]

LLMD said clean up gut first this has been a big job and at times seems impossible since my son age 7 has zero motility! Been using Mag Citrate, Mag Oxide, Vit C, Taurine, Zinc, Enzymes, Aloe Vera Juice, Fiber, Diet rotation (very difficult) but managing to puree veggies into food hidden. Custom Probiotics, SAch B, culturelle, prebiotics biotagen and a few others rotated. Melatonin, milk thistle at night. Other supplements like multi-vitamin, vit d, quercetin, pycogenol, low dose naltrexone, transdermal glutiathione.

 

Abx are Azithro, Bactrim, Flagyl, Ibuprofen, these are the meds I am sure slowing down the gut, but keeping the brain sane.

 

 

He has made great gains but obviously still sick. He has a mild flare every 7 days does not last long usually some unusual OCD, Constipation severe, anxiety, fatigue, sleep issues. Managable and brief in nature but clearly sign of Bart cycling on day 7. Since starting this protocol he has had some fabulous days too and fatigue and mood issues are nowhere like it used to be. Itching is a huge problem for him and I am sure this is related to the constipation.

 

I am noticing the protocol that helped tremendously has plateaued. Any ideas to get the gut dumping the bad stuff again? Diet and recipes would be helpful too. Thank you in advance.

 

He is so much better when the gastro tract is moving things out. Sigh...constant battle.

[sptcmom]

LLMD said clean up gut first this has been a big job and at times seems impossible since my son age 7 has zero motility! Been using Mag Citrate, Mag Oxide, Vit C, Taurine, Zinc, Enzymes, Aloe Vera Juice, Fiber, Diet rotation (very difficult) but managing to puree veggies into food hidden. Custom Probiotics, SAch B, culturelle, prebiotics biotagen and a few others rotated. Melatonin, milk thistle at night. Other supplements like multi-vitamin, vit d, quercetin, pycogenol, low dose naltrexone, transdermal glutiathione.

 

Abx are Azithro, Bactrim, Flagyl, Ibuprofen, these are the meds I am sure slowing down the gut, but keeping the brain sane.

 

 

He has made great gains but obviously still sick. He has a mild flare every 7 days does not last long usually some unusual OCD, Constipation severe, anxiety, fatigue, sleep issues. Managable and brief in nature but clearly sign of Bart cycling on day 7. Since starting this protocol he has had some fabulous days too and fatigue and mood issues are nowhere like it used to be. Itching is a huge problem for him and I am sure this is related to the constipation.

 

I am noticing the protocol that helped tremendously has plateaued. Any ideas to get the gut dumping the bad stuff again? Diet and recipes would be helpful too. Thank you in advance.

 

He is so much better when the gastro tract is moving things out. Sigh...constant battle.

 

Just briefly. your story resonated with me and I have a few minutes I can reply

I see this happen quite often in my practice too. if you have a holistic practitioner or your LLMD they will understand this

 

One can't just force feed the gut supplements for local milieu improvement. those will work short term but need to be combined with neuroendocrine support and hypothalamus regulation support. If not the gut adapts to the supplements and becomes dependent. in cases like your sons, motility issues are mostly due to low tone in the large intestinal smooth muscles and sympathetic nervous system upregulation. Neuromuscular supplements help too. A program to wean the gut off magnesium etc needs to be in place along with a muscle tone builder like carnitine- it needs to be done under the guidance of a health care practitioner. otherwise the dosages of all the force fed stuff needs to be increased as the gut adapts. Adrenal regulation to regulate stress in the gut and subsequently in the brain needs to be in place too.

 

I also don't notice any toxin binders like microsilica, bentonite clay etc in your protocol. Those are important to have in place too.

 

Google Milk Thistle interactions and double check its not cross reacting with your abx as it sometimes can.If yes then thats the reason for additional sympathetic upregulation and you need to substitute milk thistle with other liver tonification remedies.

 

Any new protocol will shock the system into alert and things work beautifully for a while but if its not addressing central regulation then things plateau.

Best,

[SSS]

My little .02 cents:

 

Don't let him stay constipated! All the gunk backing up and getting re-absorbed.

 

I like Oxy-Powder-

2-3 at night before bed, wonderful clean out.

Magnisum citrate seems to work at first (our experience) then the body gets used to it.

 

Hang in there.

[JuliaFaith]

Adrenal regulation to regulate stress in the gut and subsequently in the brain needs to be in place too.

 

Always wondered why my son was on an adrenal supplement! Had to reduce the amount prescribed by doctor because he just did not feel right on the dosage prescribed (4). REduced it to 3. Seemed to get lots more energy (more than I could handle anyway) when he started on it. When I told the dr. this she thought maybe I needed it too.

[hugs2day]

Some very good points I will bring up to the dr.. Today he is refusing food and complaining his throat and chest hurt (heartburn) so bad he will not eat meat and is refusing even his favorite snacks says it hurts to eat. wants to nibble on dry cereal and he is normally a big eater. So I know he is hurting. I started pepcid and will see doc on monday to get more advice. I think he has h pylori. he has all the symptoms.

 

 

Julia- I also love oxypowder but my son does not swallow pills so I only manage to hide one in his water throughout the day. I can hardly wait until he will swallow pills it will be so much easier.

 

LLMD said clean up gut first this has been a big job and at times seems impossible since my son age 7 has zero motility! Been using Mag Citrate, Mag Oxide, Vit C, Taurine, Zinc, Enzymes, Aloe Vera Juice, Fiber, Diet rotation (very difficult) but managing to puree veggies into food hidden. Custom Probiotics, SAch B, culturelle, prebiotics biotagen and a few others rotated. Melatonin, milk thistle at night. Other supplements like multi-vitamin, vit d, quercetin, pycogenol, low dose naltrexone, transdermal glutiathione.

 

Abx are Azithro, Bactrim, Flagyl, Ibuprofen, these are the meds I am sure slowing down the gut, but keeping the brain sane.

 

 

He has made great gains but obviously still sick. He has a mild flare every 7 days does not last long usually some unusual OCD, Constipation severe, anxiety, fatigue, sleep issues. Managable and brief in nature but clearly sign of Bart cycling on day 7. Since starting this protocol he has had some fabulous days too and fatigue and mood issues are nowhere like it used to be. Itching is a huge problem for him and I am sure this is related to the constipation.

 

I am noticing the protocol that helped tremendously has plateaued. Any ideas to get the gut dumping the bad stuff again? Diet and recipes would be helpful too. Thank you in advance.

 

He is so much better when the gastro tract is moving things out. Sigh...constant battle.

 

Just briefly. your story resonated with me and I have a few minutes I can reply

I see this happen quite often in my practice too. if you have a holistic practitioner or your LLMD they will understand this

 

One can't just force feed the gut supplements for local milieu improvement. those will work short term but need to be combined with neuroendocrine support and hypothalamus regulation support. If not the gut adapts to the supplements and becomes dependent. in cases like your sons, motility issues are mostly due to low tone in the large intestinal smooth muscles and sympathetic nervous system upregulation. Neuromuscular supplements help too. A program to wean the gut off magnesium etc needs to be in place along with a muscle tone builder like carnitine- it needs to be done under the guidance of a health care practitioner. otherwise the dosages of all the force fed stuff needs to be increased as the gut adapts. Adrenal regulation to regulate stress in the gut and subsequently in the brain needs to be in place too.

 

I also don't notice any toxin binders like microsilica, bentonite clay etc in your protocol. Those are important to have in place too.

 

Google Milk Thistle interactions and double check its not cross reacting with your abx as it sometimes can.If yes then thats the reason for additional sympathetic upregulation and you need to substitute milk thistle with other liver tonification remedies.

 

Any new protocol will shock the system into alert and things work beautifully for a while but if its not addressing central regulation then things plateau.

Best,

[SSS]

One time when my dd's gut was really backed up, her DAN! Doctor at the time said:

Time for a 'gully wash'

and he had me get the liquid magnesium citrate from the local drugstore off the shelf

(it's like $1.99, glass bottle)

and I gave her a whole bottle of it throughout a day:

Totally worked!

(for some reason this liquid works different than mag citrate capsules)

Poor guy.

Sounds like he might have a blockage if he's not eating now, either :-(

[dpet]

I'm new to the pandas and Lyme forums. Im not sure if any of you are familiar with max or Charlotte gerson, they have a few movies online called a beautiful truth and the gerson miracle. They have cured many ailments including cancers by an organic vegitarian juicing and raw food diet. The other main thing is they do an organic coffee enema along with the vegetable only diet. The caffeine in the coffee is absorbed by the liver and spews toxins out thereby making the liver filtered so it can do its job properly. Many people do coffee enemas for detoxification. Have any of you heard from anyone that this could be helpful?