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I am the mother of a fifteen year old boy diagnosed with PANDAS, who also has high levels of clostridia and yeast. I will be travelling to the U.S. in July with my son and will be staying for a total of two weeks in the New York/New Jersey area. During our stay, we will be seeing Dr Trifiletti as well as Scott Smith. I would really like to make the most of our stay and would like to ask the advice of this forum about any tests we should do and any other specialist/doctor we should see.

 

Does anyone have any advice on tests which are indespensable, that we really should do? Also, are there any prefered labs in the New Jersey/New York area, where we will be staying? Furthermore, is there anyone else we should perhaps see during our stay, another PANDAS/autism specialist? This will be a long trip for us and I want to make sure that we make the most of it. Any advice appreciated.

 

Thank you

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