Jarisch-Herxheimer Reaction - sudden worsening

[gunillafromsweden]

As many of the parents here, I am becoming a amateur researcher, and building a web site in Swedish about PANDAS I am learning so much, as I want my web to be a reource for parent's as well as doctors. Anyway, as I vae read many stories of PANDAS where children suddenly worsen in symtoms, especially when starting on new meds or chaning abx, I thought you might be interested to know that the sudden worsening may be part of the healing process. It is called Jarisch-Herxheimer Reaction, and you can read about it here.

 

 

http://www.lymediseaseblog.com/jarisch-herxheimer-reaction-lyme-disease/

 

This means, if I understand it that you should not always think the child can't tolerate the meds or change meds again when you see a sudden worsening.

 

 

Gunilla

[Fixit]

As many of the parents here, I am becoming a amateur researcher, and building a web site in Swedish about PANDAS I am learning so much, as I want my web to be a reource for parent's as well as doctors. Anyway, as I vae read many stories of PANDAS where children suddenly worsen in symtoms, especially when starting on new meds or chaning abx, I thought you might be interested to know that the sudden worsening may be part of the healing process. It is called Jarisch-Herxheimer Reaction, and you can read about it here.

 

 

http://www.lymediseaseblog.com/jarisch-herxheimer-reaction-lyme-disease/

 

This means, if I understand it that you should not always think the child can't tolerate the meds or change meds again when you see a sudden worsening.

 

 

Gunilla

 

Hi Gunilla,

Being new it is sometimes hard to know how much you can research on this site.

There has been discussion in the past about this. It is more frequently talked about on the lyme section.

I seems to me that some kids experience a herx in regards to ivig. We have not done ivig.

It does become confusing between herx and bad med....that is the connundrum for alot of us.

 

It is good to post things like this as it might remind parents of things they may have forgotten or put a different spin on the same topic that might give someone that AH-HA moment.

 

It is great that you are taking this on, in another part of the world.

Best of wishes and succes in finding more support!!!

[LNN]

A herx is generally caused by the release of toxins - from the die off of bacteria. So for a herx, helping the body detox and rid itself of these toxins can be very helpful. Here's a recent thread on the topic http://www.latitudes.org/forums/index.php?showtopic=17155

 

best of luck on your public awareness efforts!