momcap Posted April 19, 2012 Report Posted April 19, 2012 We have been watching my DS6's TSH creep up with every monthly blood draw. Last month it was over 4 which is considered hypothyrodism in children. This month it is over 6. Has anyone here dealt with this? He doesn't seem to have any of the symptoms (yet?) - no swollen thyroid gland, and he's one of the tallest in his class. Could this be related to lyme/TBI/PANDAS? I don't think he has PANDAS, but he was a strep carrier for years, and he does have some PANDAS symptoms. He is being treated for lyme (positive on Western Blot) and bartonella (clinical diagnosis). Any thoughts?
JuliaFaith Posted April 19, 2012 Report Posted April 19, 2012 We have been watching my DS6's TSH creep up with every monthly blood draw. Last month it was over 4 which is considered hypothyrodism in children. This month it is over 6. Has anyone here dealt with this? He doesn't seem to have any of the symptoms (yet?) - no swollen thyroid gland, and he's one of the tallest in his class. Could this be related to lyme/TBI/PANDAS? I don't think he has PANDAS, but he was a strep carrier for years, and he does have some PANDAS symptoms. He is being treated for lyme (positive on Western Blot) and bartonella (clinical diagnosis). Any thoughts? Is you son on any thyroid medication? My son's TSH was 10.34 and now, several months later with thyroid treatment, it is at 3.86. His doctor wants to see it below '1' before taking him off the meds. He was diagnosed with hypothyroidism but dr. says it can switch quickly to hyperthyroidism. Not sure why. Also, just read that lyme attacks the thyroid first, because the thyroid works at fighting off the lyme. So the lyme knows that and attacks the thyroid first. Interesting huh?
fightingmom Posted April 19, 2012 Report Posted April 19, 2012 I was searching for something unrelated and came across this today. Thought it might be helpful: http://www.stopthethyroidmadness.com/lyme-disease/
mdmom Posted April 19, 2012 Report Posted April 19, 2012 My daughter's first diagnosis was hypothyroidism (at age 8) until she was finally dx with Lyme, Babesia and Bartonella 1 year ago at age 12. LLMD says Lyme loves to attack thyroid and pituitary gland, where TSH is made. She is on Armour Thyroid and the doc prefers to see a TSH below 2, although most docs will say it has to be above 4.5 for treatment.
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