Kimflow Posted April 4, 2012 Report Posted April 4, 2012 Hi, The DAN doctor has ordered the following: antiDnase B strep antibodies antistreptolysin O Ab CBC diff IG AEGM IgG subclasses 1-4 streptozyme Vit. D Comp. Metabolic Panel Histamine level My question is this: Are the CaM Kinase and the antineuronal antibodies only done by a certain lab. I head that Dr. Cunningham wasn't accepting specimens anymore. I just need to know if I need to beg the pediatrician up here to add this on as I don't want to stick him twice nor miss something. Thanks, Kim
LNN Posted April 4, 2012 Report Posted April 4, 2012 You cannot measure CamKII and the anti-neuronal tests at this time. The Cunningham study is closed and while they are working on a commercial test, I don't think it's available yet. No need to beg pedi for anything. It isn't available right now.
madbay Posted April 4, 2012 Report Posted April 4, 2012 I would test for Mycoplasma and Lyme western blot while you are at at. Myco is a common co infection with pandas and can complicate treatment.
philamom Posted April 4, 2012 Report Posted April 4, 2012 I would add on Streptococcus Pneumoniae (14 serotype). It may help support an immune deficiency diagnosis.
Kimflow Posted April 7, 2012 Author Report Posted April 7, 2012 (edited) thanks I am writing this all down. We go today for the bloodwork and I forgot that I wrote this post until now...I am just living day to day right now......but I can always take him back to get add on's done. I will just have to. I hope the blood draw is not like the blood draws when he was a small child. The pediatrician is no help at all, the DAN doctor is tough to steer a certain way, so it may have to wait until I get to next practitioner like Dr. Latimer in August(yes, Iam realizing this is too long) or Deborah McCabe if I can see her earlier. Or I will end up driving to Dr. B or the Dr. T I think in New Jersey. Kim Edited April 7, 2012 by Kimflow
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now