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Posted

Hi,

The DAN doctor has ordered the following:

antiDnase B strep antibodies

antistreptolysin O Ab

CBC diff

IG AEGM

IgG subclasses 1-4

streptozyme

Vit. D

Comp. Metabolic Panel

Histamine level

 

My question is this:

Are the CaM Kinase and the antineuronal antibodies only done by a certain lab. I head that Dr. Cunningham wasn't accepting specimens anymore.

 

I just need to know if I need to beg the pediatrician up here to add this on as I don't want to stick him twice nor miss something.

 

Thanks,

Kim

Posted

You cannot measure CamKII and the anti-neuronal tests at this time. The Cunningham study is closed and while they are working on a commercial test, I don't think it's available yet. No need to beg pedi for anything. It isn't available right now.

Posted (edited)

thanks I am writing this all down. We go today for the bloodwork and I forgot that I wrote this post until now...I am just living day to day right now......but I can always take him back to get add on's done. I will just have to. I hope the blood draw is not like the blood draws when he was a small child.

 

The pediatrician is no help at all, the DAN doctor is tough to steer a certain way, so it may have to wait until I get to next practitioner like Dr. Latimer in August(yes, Iam realizing this is too long) or Deborah McCabe if I can see her earlier. Or I will end up driving to Dr. B or the Dr. T I think in New Jersey.

Kim

Edited by Kimflow

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