Jucing and Tourette Syndrome

[Jen Padgett]

 

Hi everyone I'm New,

My son is 9 years old and we where told he has TS 6 months ago. We have tried several meds and the only one that seems to be half as good is Topamax. Everything else has made him have more tics and side effects that make him see scary faces in his mind, his eyes get to be the size of saucers and he shakes like he's being over medicated. We are at our wits end. Our son has only Ts. No ADD/ADHD, OCD. Doe's anyone do Jucing? If so has it helped and can you send me some recipes? Also, what vitamins should he be taking? His Nerologist hasn't given us much information about these things. She just keeps changing his meds. I know you have to play around with the meds because they don't have a cure for TS yet but come on, somethings got to give. Has anyone used rispodol? Sorry about the spelling. That's the next medicine she wants to try. Doe's anyone know of a Support Group in Fredericksburg, Virginia? I would love to get my son involved with other kids with TS his age. HELP.

Thanks,

Jennifer

[Dobian]

The only thing I ever took for Tourette's is Clonidine. It reduced my tics by probably 80%, but as it is a blood pressure lowering drug, even a small dose made me light-headed and I would almost pass out. I decided it wasn't very safe for me to take it. Maybe if I had high blood pressure....then it would be a great solution.

 

I'm sorry about your son. I developed TS when I was 7....that was 37 years ago. Back then they knew even less than they do now. My mom didn't know what was wrong with me and thought it was psychological trauma from my early childhood.

[Chemar]

Hi Jennifer and welcome:)

 

you will find that most of us here are not fans of the medications that the conventional neuros seem to push for TS. In my case, my son suffered VERY severe side effects (some irreversible) from the medications we allowed him to be precribed for one year after he was first dx

Since coming off the meds 6 years ago and following the natural treatments, his TS has gone from very very severe to so mild that it is barely noticeable.

 

I have documented the treatment protocol that we followed in this thread

 

http://www.latitudes.org/forums/index.php?showtopic=687

 

Do also take a look at Sheila's excellent article on tic triggers

http://latitudes.org/articles/finding_triggers.htm

 

and maybe consider getting her new book which is by far the best resource on alternative treatments for tics and tourettes

http://www.latitudes.org/book.html

 

Juicing is an excellent form of nutritional supplementation and is known to be very beneficial.

 

I would be very careful of Resperidol as I know of a number of people who have had serious side effects on it.

 

For a local support group, I would recommend contacting the Tourette Syndrome Association to see if there is one in your area

http://www.tsa-usa.org

 

If you have any more questions or need additional info ask away....this is a great group for support and knowledge sharing

 

Cheri

[azhorsegal]

Hi Jen, my 7 year old daughter was just diagnosed with "Childhood Motor Tic Disorder", her Neurologist said he would not classify it as TS, as insurance companies frown at any treatment for TS. But that's about the only helpful thing he did. Pretty much said nothing we can do, if it got worse (and would during adolesence)then bring her in and he'd stick her on Topamax (he did say all other medications have side effects that are worse than the tic disorder). I for one don't want her on drugs if I can help it so in my search for answers I found this website (a God send!!!) I would also say ditto to getting Sheila's book, I'm just about done reading it and it's been a WEALTH OF INFO! Definitely a must have for anyone dealing with Tics or TS. I would suggest having your son tested for any food allergies, seems to be a big help to those with tics, even though Neurologists will say there is no connection. Many on this forum will say otherwise. My daugther just got tested for Celiac and she's going in next week for conventional testing for food allergies. Our Naturopathic MD has already tested her and she was positive for gluten intolerance, AND corn, which makes it even harder. I'm having the blood work done just to be sure (and to satisfy my sceptic family members). Good luck and my prayers go out to you and your family. I know how unsettled and concerned you are and it sounds like to me you are searching for a better way, so your son is lucky to have you as a mom.