Mayzoo Posted March 20, 2012 Report Share Posted March 20, 2012 As far as supplements go, how does this one look? See any glaring concerns? We are in a good place right now with kiddo. She currently takes a MV, Omega, IBU, and coconut oil in the am...zith, IBU, melatonin, coconut oil in the PM. This would only replace her MV and Omega. I was thinking about 2 caps a day in am for her (50lbs). My link Thanks for any input. Link to comment Share on other sites More sharing options...
fightingmom Posted March 20, 2012 Report Share Posted March 20, 2012 I am new to this, so just wondering after reading the ingredients if the streptococcus probiotics are alright? Link to comment Share on other sites More sharing options...
Mayzoo Posted March 20, 2012 Author Report Share Posted March 20, 2012 (edited) I am new to this, so just wondering after reading the ingredients if the streptococcus probiotics are alright? You will get conflicting answer to that one. Some feel it is bad to introduce anything with the word streptococcus in it. Others feel there is a difference between Strep A bacteria (live) and streptococcus probiotic. I will let the more learned than I on the subject chime in. Edited March 20, 2012 by Mayzoo Link to comment Share on other sites More sharing options...
fightingmom Posted March 20, 2012 Report Share Posted March 20, 2012 In the little bit I've been reading on the subject, I've been having that same internal struggle with myself as the conflicting answers you noted above -- hence the reason I asked. I appreciate your response! Link to comment Share on other sites More sharing options...
Mayzoo Posted March 20, 2012 Author Report Share Posted March 20, 2012 Yeah, I am a little torn too, but I did give her a probiotic that had this in it in the beginning and she still improved some. Then I tried one without this in it and she still improved at about the same rate. Right now, she is not on probiotics since we could not clear an infection for two months. A pharmacist buddy of mine told me to lay off the probiotics in general as they may be lessening the abx effectiveness regardless of the time separation (6-8 hours apart). After we laid off the probiotics, the infection cleared so he may have been right. Now that it is cleared, I am considering putting her back on the probiotics during the remainder of abx treatment. Link to comment Share on other sites More sharing options...
fightingmom Posted March 20, 2012 Report Share Posted March 20, 2012 Argh...everything is so trial and error. I really wish we had something conclusive to go on and some more research would be done for these poor kids!! Link to comment Share on other sites More sharing options...
LNN Posted March 20, 2012 Report Share Posted March 20, 2012 There is disagreement even among us old timers on this one. First, I think it's important to realize that there are many variations of gut issues, so what works or doesn't work for one doesn't translate to be true for everyone. Scientists have discovered at least 3 gut "types" akin to blood types http://www.nytimes.com/2011/04/21/science/21gut.html This site gives a good overview of the benefits of S Thermopolis and other probiotics http://probiotic.org/streptococcus-thermophilus.htm and structurally, it seems quite different than the strep that plagues our kids. My kids have never had issues with S Thermopolis and their eating it seems to have no correlation with their moods. But others feel it's better safe than sorry. Some have great success with Sacc. Boulardi, which is a yeast probiotic and can therefore be given at the same time as antibiotics. My son seems to struggle more whenever we've added Sacc B to our mix. So I no longer use it. There doesn't seem to be a ton of research on probiotics in general and certainly not on how a particular strain effects a PANS kid. I think it's highly individual and you either have to trust your gut or experiment on this one. It's been fine for us. Link to comment Share on other sites More sharing options...
Mayzoo Posted March 20, 2012 Author Report Share Posted March 20, 2012 (edited) Argh...everything is so trial and error. I really wish we had something conclusive to go on and some more research would be done for these poor kids!! duplicate post...sorry computer hiccup Edited March 20, 2012 by Mayzoo Link to comment Share on other sites More sharing options...
Mayzoo Posted March 20, 2012 Author Report Share Posted March 20, 2012 Argh...everything is so trial and error. I really wish we had something conclusive to go on and some more research would be done for these poor kids!! Oh, you just want to take all the "fun" out of this don't ya . Seriously though, with all the kids being different metabolically, genetically, vax history, medically history, abx history, etc...there will likely never be a one size fits all *sigh* but we can keep wishing . Well, I bought it anyway. If she cannot take it then I will as my nutrition and energy levels is dismal most times anyway. Link to comment Share on other sites More sharing options...
philamom Posted March 20, 2012 Report Share Posted March 20, 2012 Dr. T once told me that some kids react to it, some don't - so it's kinda trial and error. The good thing is, there are plenty of probiotics without the S. Therm if you choose so. Link to comment Share on other sites More sharing options...
fightingmom Posted March 20, 2012 Report Share Posted March 20, 2012 Argh...everything is so trial and error. I really wish we had something conclusive to go on and some more research would be done for these poor kids!! Oh, you just want to take all the "fun" out of this don't ya . Seriously though, with all the kids being different metabolically, genetically, vax history, medically history, abx history, etc...there will likely never be a one size fits all *sigh* but we can keep wishing . Well, I bought it anyway. If she cannot take it then I will as my nutrition and energy levels is dismal most times anyway. Yep, I hear ya. At least it won't go to waste if she can't take it. Fingers crossed she tolerates it! Link to comment Share on other sites More sharing options...
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