Fever, Tics and New to this

[kgrrl]

I'm new to this and here's my story. My son is now 3, but 6 months ago he had a sudden onset of tics plus behaviour after a response to a viral infection of the throat (did not test positive for strep). The past 3 months his tics + behaviour waned and he got an infection, a very high temperature a couple of weeks ago and now we are having the same episode. He has not been himself for the past 3 days, very hyperactive, sleep disturbance, defiant, physically aggressive, repeating the same song, which his baseline is not himself - happy, calm and precocious. His neurologist said to sit tight as it is to be expected with a tic disorder and it has happened before. I feel so helpless and to just wait it out and do nothing doesn't seem acceptable. I don't know where to begin. We got a second opinion from another neurologist and said the same thing about waxing and waning. What other doctors should we be talking to, Where do I begin? I'm very worried.

[Fixit]

I'm new to this and here's my story. My son is now 3, but 6 months ago he had a sudden onset of tics plus behaviour after a response to a viral infection of the throat (did not test positive for strep). The past 3 months his tics + behaviour waned and he got an infection, a very high temperature a couple of weeks ago and now we are having the same episode. He has not been himself for the past 3 days, very hyperactive, sleep disturbance, defiant, physically aggressive, repeating the same song, which his baseline is not himself - happy, calm and precocious. His neurologist said to sit tight as it is to be expected with a tic disorder and it has happened before. I feel so helpless and to just wait it out and do nothing doesn't seem acceptable. I don't know where to begin. We got a second opinion from another neurologist and said the same thing about waxing and waning. What other doctors should we be talking to, Where do I begin? I'm very worried.

 

You should post in which state you live.

Get to a Pandas dr asap. Be it a working DAN PA NEURO or other DR, not the ones(that is mostly all DRs) who will not look or treat outside the information they are spoon fed.

 

also known as transient tic

My theory is that for some their immune system will finally quiet, or the infection will clear and then the symptoms will go away.

For alot of patients that will take years or never.

While young, like your child, i'd been very fortunate to get complete remission with standard courses of abx.

If it works, i would suggest trying to get a longer course to make sure it is good and gone.

[kgrrl]

I'm new to this and here's my story. My son is now 3, but 6 months ago he had a sudden onset of tics plus behaviour after a response to a viral infection of the throat (did not test positive for strep). The past 3 months his tics + behaviour waned and he got an infection, a very high temperature a couple of weeks ago and now we are having the same episode. He has not been himself for the past 3 days, very hyperactive, sleep disturbance, defiant, physically aggressive, repeating the same song, which his baseline is not himself - happy, calm and precocious. His neurologist said to sit tight as it is to be expected with a tic disorder and it has happened before. I feel so helpless and to just wait it out and do nothing doesn't seem acceptable. I don't know where to begin. We got a second opinion from another neurologist and said the same thing about waxing and waning. What other doctors should we be talking to, Where do I begin? I'm very worried.

 

You should post in which state you live.

Get to a Pandas dr asap. Be it a working DAN PA NEURO or other DR, not the ones(that is mostly all DRs) who will not look or treat outside the information they are spoon fed.

 

also known as transient tic

My theory is that for some their immune system will finally quiet, or the infection will clear and then the symptoms will go away.

For alot of patients that will take years or never.

While young, like your child, i'd been very fortunate to get complete remission with standard courses of abx.

If it works, i would suggest trying to get a longer course to make sure it is good and gone.

 

I'm in the bay area, CA.

[minimaxwell]

Contact Diana from PANDAS Network,she is in CA and may have some ideas for you. they are also on Facebook.

 

http://pandasnetwork.org/