trying to get a hold of Dr. T.

[little red]

My daughter is a patient of Dr. T's. She was recently diagnosed with strep throat and went into a PANDAS relapse. I have been trying to get a hold of Dr. T. for a week and a half. I have even spoken to the nurse 4 times, giving her the scenario etc. and NO response, no call, no email, nothing. Any advice? I know he is busy, but really.

[EAMom]

I assume they put her on antibiotics for the strep? Which one and what dose? Are they helping? How much does she weigh?

 

Was she already on prophylactic abs? Which one?

 

Are there siblings? I would culture everyone in the family to make sure nobody else is carrying strep.

 

Are you giving Advil?

 

How bad is the relapse?

[little red]

Well,

she was seen at an immediate care because she started having symptoms on the weekend. She got it at preschool, where 5 other kids were also diagnosed with strep throat. He would only give her penicillin. Since we couldnt get a hold of Dr. T., our pediatrician put her on Cefdinir 250mg .5tsp twice a day. She weighs 36 lbs. He said that he recently read data that showed it worked well in PANDAS kids. She did start to show lots of improvement after about 5 days.

 

Her relapse was pretty bad with rages, no impulse control, anxiety, major OCD, lack of eating, not sleeping, separation anxiety from me and leaving the house... etc. Definitely still not able to return back to school yet. Although she is better overall, she has started having alittle more return of symptoms instead of steadily getting better. Not sure what is going on.

 

I was also giving her Ibuprofen twice a day. We do have questions about doing prophylactic abx. In her history, she has had a pandas relapse 3 times now. Once in Sept 2010, then again in Sept 2011, and now in Feb. I am interested in seeing what kind of prophlactic abx trtmts people are using. I have seen that some people do a low daily dose, some do 1 week out of a month. How do you figure all that out?

 

I do love Dr. T. and I know he is busy. Hopefully we will hear from him soon.

Thanks.

[Kiera]

I think most kids have found benefit from continuous antibiotics, at prophylactic dose when no symptoms, then bumped up to treatment dose at the first sign of symptoms returning, and then a longer treatment dose than the average child, to clear the infection, or until symptoms subside again. It is therorized that antibiotics have an immune modulation effect that helps symptoms, aswell as strep prophylaxis. Which antibiotic is kinda trial and error, or depending on the infective organism - strep, mycoplasma, etc.

[little red]

Thanks, Fcefxer! I really appreciate it.