Does this dose sound too high?

[SSS]

Hi- dd6 and I very recently (2 days ago initial appointment) switched our Lyme Dr.

I am feeling optimistic, although know there might be hard treatment in front of us.

 

Anyway, one of the things prescribed for dd6, 46 pounds, was Amoxicillin.

2,000 mg a day.

She was on it before at 1,500 a day.

Online search I found printed:

'Never more than 1,500 mg a day' (for serious infection.)

Just wondering if anyone, or their child, has taken more than

1,500 mg a day?

Thank you!

[LNN]

DS9 (75 lbs) is on 1000 mg - 500 in am, 500 in pm.

[philamom]

My daughter 10 (68lbs) was also on 1000 mg daily.

[SSS]

Thanks, sounded too high to me, I'm going to take it down.

[momcap]

DS8 (75 lbs) takes 3000 mg a day in 3 doses. Our LLMD originally prescribed 4500 mg a day (!!!). I freaked out, we discussed, and we lowered it to 3000, which still worries me, but he's been on this dose since September. Her reasoning for such a high dose is that is has to get to a very high concentration to get into the brain for neuroborreliosis. She told me of some big name lyme docs that are using these high doses, and much higher doses in adults. I still don't feel 100% comfortable with it, but the VERY dramatic gains we saw at the beginning of treatment were on the 4500mg dose of amoxicillin alone, before we added in other abx. And when we dropped to 3000mg, we saw some symptoms return, even though the overall improvement is amazing. I've wondered about going back to that high dose, but it scares me. Now we are supposed to add probenecid which is a booster for penicillin type drugs. I'm really worried about boosting the already super high dose, but I'm also wondering if it will give us the dramatic results again. I'm planning to do a consult with our LLMD about other options, because I'm still not feeling comfortable and ready to do this. I must say so far the high dose of amoxicillin has been amazingly successful, I'm just worried about possible side effects.

 

My younger 2 boys do not have neurological symptoms, so their dose is 1500 mg (they both weigh around 55 pounds). They primarily complain of joint and muscle pains, and those complaints resolved within a few months. We've just added a cyst buster and I'm hoping to complete their treatment soon.

[SSS]

Thanks for sharing, momcap, all very interesting for me to read.

 

Dd has been on Amoxicillin now for 4 days, along with Biaxin for the last 4 days.

I tell you what: she is clearer, telling stories with great humor and laughing- happier periods of time.

(Along with spells/episodes of die off. Shorter, but it's there, stressful, but it's that way, anyway.)

 

Every time I see a direct, significant reaction from antibiotics, it

still strikes me.

 

I think I'll put a call/quick message to our new Dr. and double check what he says...