Suzan Posted February 29, 2012 Report Posted February 29, 2012 (edited) I have an update after 3 months of treatment with our natural doc. We are completely off medication and taking only naturals. This is after 1 1/2 years of taking lyme protocol abx and 2 years of pandas abx for dd's. He is working on healing our gut, supporting the liver, treating candida and heavy detoxing in addition to homeopathic lyme treatment, neurotransmitter balancing (for dd10) and hormone balancing and parasites(for me). Oh and also laser allergy treatment that I think has been hugely succssful in lowering the load. We are off all allergy meds except for eye drops and I just started some nasal spray for the cedar trees that are bad right now. dd9 has a slow and hard to notice improvement but she is much improved. She can walk for 3 hours straight in the cold at the zoo without complaining or asking to be picked up. She has gained 8 lbs and I'm sure she's grown. She is more calm but the biggest improvement is around her food. She's had food OCD as her major symptom and she is eating a vairety of food, a lot of food and will try new food and her food can now touch on her plate. dd10 has had a reduction in her anxiety and was able to move out of her sisters room into her own bedroom. She can have sleepovers now and is not deathly afraid of the weather changes. She does still have a lot of anxiety and is currently having irrational episodes 2-3 times a day. She has no moare pain or other physical complaints. She has eczema and odd rashes all over her body and is currently resistant to taking showers or getting wet. I have increased energy and the ability to organize better. I can begin to go through the junk in the house and get rid of it and also I can cook dinners again. Not to the ability of before but it's a start. I still resist making any plans or appointments the require making phone calls or checking voicemail. I am not as overwhelmed in general and don't need as much rest. I still have buzzing in my back and random pain but not too bad. Biggest news is that my gray hair is turning dark brown again It's so cool I hope it continues. If you got this far thanks for reading. Making the move to our new doctor has been a great success. We are changing our protocol now for the next three months and I hope to see good improvement again. Susan Edited February 29, 2012 by Suzan
tpotter Posted February 29, 2012 Report Posted February 29, 2012 I have an update after 3 months of treatment with our natural doc. We are completely off medication and taking only naturals. This is after 1 1/2 years of taking lyme protocol abx and 2 years of pandas abx for dd's. He is working on healing our gut, supporting the liver, treating candida and heavy detoxing in addition to homeopathic lyme treatment, neurotransmitter balancing (for dd10) and hormone balancing (for me). Oh and also laser allergy treatment that I think has been hugely succssful in lowering the load. We are off all allergy meds except for eye drops and I just started some nasal spray for the cedar trees that are bad right now. dd9 has a slow and hard to notice improvement but she is much improved. She can walk for 3 hours straight in the cold at the zoo without complaining or asking to be picked up. She has gained 8 lbs and I'm sure she's grown. She is more calm but the biggest improvement is around her food. She's had food OCD as her major symptom and she is eating a vairety of food, a lot of food and will try new food and her food can now touch on her plate. dd10 has had a reduction in her anxiety and was able to move out of her sisters room into her own bedroom. She can have sleepovers now and is not deathly afraid of the weather changes. She does still have a lot of anxiety and is currently having irrational episodes 2-3 times a day. She has no moare pain or other physical complaints. She has eczema and odd rashes all over her body and is currently resistant to taking showers or getting wet. I have increased energy and the ability to organize better. I can begin to go through the junk in the house and get rid of it and also I can cook dinners again. Not to the ability of before but it's a start. I still resist making any plans or appointments the require making phone calls or checking voicemail. I am not as overwhelmed in general and don't need as much rest. I still have buzzing in my back and random pain but not too bad. Biggest news is that my gray hair is turning dark brown again It's so cool I hope it continues. If you got this far thanks for reading. Making the move to our new doctor has been a great success. We are changing our protocol now for the next three months and I hope to see good improvement again. Susan I am so glad for you. Do you think you have also successfully avoided getting exposed to illness during this time? We have also been seeing a holistic chiropractor...actually for close to a year now, and although I feel like we've done extremely well, we just can't avoid getting re-exposed (I get exposed at work, and DS16 keeps getting exposed at school.) It's very frustrating, as I believe quite a number of my clients have PANS, and that other of their family members have mycoP or strep, and short of taking off from work (I told my DH that if I had disability income insurance, I would definitely take off), I don't know what else to do. DS16 goes to a private school where I suspect a lot of those kids are sick, and he's constantly getting ill (he's missed several months of school this year.) Whenever I try to decrease abx, we get much sicker.
Suzan Posted February 29, 2012 Author Report Posted February 29, 2012 I am so glad for you. Do you think you have also successfully avoided getting exposed to illness during this time? We have also been seeing a holistic chiropractor...actually for close to a year now, and although I feel like we've done extremely well, we just can't avoid getting re-exposed (I get exposed at work, and DS16 keeps getting exposed at school.) It's very frustrating, as I believe quite a number of my clients have PANS, and that other of their family members have mycoP or strep, and short of taking off from work (I told my DH that if I had disability income insurance, I would definitely take off), I don't know what else to do. DS16 goes to a private school where I suspect a lot of those kids are sick, and he's constantly getting ill (he's missed several months of school this year.) Whenever I try to decrease abx, we get much sicker. We have done pretty well there although we just went through 2 weeks of being sick. My girls are exposed every day at their school and they have not gotten strep (knock on wood), just this cold virus. dd10 does react to the viruses still We are taking Laurcidin which should help fight that stuff off and we are working on our immune systems as best we can. Maybe it's necessary to stay on the abx to a certain point before going 100% natural to stay away from the issues you are talking about. I'm not sure yet since we are still in the beginning. I'll be glad when strep season is over though!
SSS Posted February 29, 2012 Report Posted February 29, 2012 Susan, that's GREAT! Thanks for providing a detailed update, I could relate to it.
JuliaFaith Posted February 29, 2012 Report Posted February 29, 2012 So good to hear healing is progressing for you and your family, Susan. The way I see it, one month down (or 3 in your case), hopefully will never have to return there. Best continued healing wishes for everyone!
LNN Posted March 1, 2012 Report Posted March 1, 2012 Suzan - so happy for you guys!! May this be the turning point!
Suzan Posted March 4, 2012 Author Report Posted March 4, 2012 DD10 had her re-evaluation and he gave her Kavinace to take for her anxiety, mood and episodes. It seems to be helping as long as she takes it before she gets triggered. I've been bribing her with 25 cents every time she takes her pills with a positive attitude and no complaining or resisting. After a few days of internal struggle over this, she seems able to do it. She is trying to save money for something which will take her a year to save for at 50 cents a day! So hopefully she will stay motivated to take her pills for that amount of money! Anyone else taking Kavinace? Susan
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